Feeling frustrated by the NHS 😠: I’ve got lupus... - LUPUS UK

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Feeling frustrated by the NHS 😠

Kelihunt41 profile image
3 Replies

I’ve got lupus and had chronic sciatica since April. In July I was diagnosed with a torn Achilles’ tendon. 6 doctors later, I’m no further forward with any treatment. I’m in excruciating pain but just keep getting fobbed off with co-codamol and at one point oramorph. I’ve been waiting nearly 11 weeks for an ultrasound and even longer for a physio appointment. I’m now considering using my savings to go private as the pain is really affecting my quality of life. I feel I’m at breaking point. I’ve asked for a quote for a private scan and treatment, just hope it’s not too expensive. :-( xx

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Kelihunt41
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Blueeyes57 profile image
Blueeyes57

So feel for you as have had that myself and

It

Is agonising! Apparently if it doesn't heal naturally you can have surgery I would suggest getting another opinion from specialist. I hope it improves.

lotsoissues profile image
lotsoissues

sounds like psoriatic arthritis. do you have any family history of psoriasis?

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Kelihunt41 ,

Have you tried speaking with the PALS team at the hospital to raise your concern and see if they are able to push things along?

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