I have many symptoms but this one is strange...

[suzannejayne]

Well its strange for me anyway! For years I thought I was hypoglycaemic as after walking or any activity like gardening mainly when the sun is shining or if I eat sugary things before exercising I would start to sweat uncontrollably and shake and I mean really shake. I used to get really really dizzy and feel like I was about to pass out. I would have to stop immediately and rest as I could barely stand. However every glucose test always came back negative. I have many other symptoms but I'm wondering if this is a lupus symptom ?

[Ccupcakes]

Morning,

I can totally relate to this! Although I am diabetic and sometimes my meds cause hiccups with my bloods, I do work hard with my diabetes nurse to keep them under control, but like you, this still happens to me periodically, even though my bloods are ok.

I have fibromyalgia as well, and the sweats are a part of that, so I was given Pregabalin, which has helped, but it does still occur. It's a horrible feeling isn't it ? I have to keep a small rolled up tea towel in my bag to mop up with, and a big old fashioned hand fan ( I've learned that little bags are a thing of the past, I'm now officially 'a bag lady'!) As for the weakness, I just can't be upright, have to sit or lie down, I don't know if its the Lupus or the fibro, but I so feel for you

Love n cool hugs

Cc xx

[suzannejayne in reply to Ccupcakes]

Good morning. I am also on pregabalin and was diagnosed with fibromyalgia 10 years ago too. It is horrible! So embarrassing at times especially if I'm out in public, I also used to take a flannel out with me so I know where you're coming from lol It also happens after I have a hot shower or bath, its a strange sensation and not a pleasant one lol thanks for taking the time to reply, I hope your symptoms improve soon xx

[whisperit]

Hello suzannejay,

I've no idea what is going on for you. I've no idea what is going on for me either, but here are similarities, whatever it is!

I'v posted here a few times about the episodes of shaking, hot flushes, exhaustion and nausea that I get daily since starting treatment for UCTD last March. Like you, one of my first thoughts was to check my blood sugar, but this has always been normal. It has been so severe at times that I have been admitted to hospital twice in that time.

The only suggestion that my various doctors have come up with at the moment is that I have developed fibromyalgia as a result of chronic sleep disturbance. It does seem to be the case that these episodes are worse after an especially bad night. It also seems like reducing my prednisolone has helped.

Please let us now how things go x

[suzannejayne in reply to whisperit]

Hiya, its awful isn't it, I usually find that once I've laid down and eaten it usually gets better after half an hour or so. It's very frustrating not knowing what is causing this, so I feel your pain! I also have fibromyalgia although I think this is a wrong diagnosis as they couldn't diagnose anything else lol I will let you know if I get any results! fingers crossed x

[suzannejayne]

Hi! Just a quick update, went to rheumatology appointment, he said its not his field of expertise but he thinks it needs looking into so he has put me onto another waiting list to see another consultant. I also need more blood tests to see if I have an autoimmune disorder but again I have to wait to see someone else. Hope I don't have to wait too long....