VITAMIN B: Does anyone here take vitamin B? I have... - LUPUS UK

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VITAMIN B

bones-bones profile image
4 Replies

Does anyone here take vitamin B? I have MCTD and Sjogren's and wonder if this would help. I don't go out when the sun is shining in the summer. I am having a flare at the moment and feel pretty grim. Any suggestions on dosage and which brand is best.

Thanks a lot.

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bones-bones
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4 Replies
Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi bones-bones ,

Do you mean vitamin D? I'm just asking because there is a group of B-vitamins and you've mentioned lack of sun exposure which could potentially cause a deficiency in vitamin D.

Have you asked your GP to do any blood tests to check your levels and whether you are deficient? If you are deficient then they can recommend what dose you may require.

PMRpro profile image
PMRpro

Was about to say exactly the same as Paul!

bones-bones profile image
bones-bones

Sorry....of course I mean Vit D. I don't know how I get through the day without creating confusion.....but that's another question!

1985mum profile image
1985mum

Do you mean vit B or vit D? Just your mention of not going out in the sunshine makes me question.

If vit B, any super complex is good but make sure it hasn't got more than 50mg of B6 in it because this can worsen neuropathies.

If vit D, apparently liquid D3 that you can get in gel caps is good. I personally take Ostelin. Just recently I've been taking 6000mg a day to get my levels up above 100 but I've started scaling back until I get to 1200mg per day.

I'll be interested to see what others say.

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