I'm new to the forum, I got diagnosed with sle when I was 18. It got fairly well managed on medication after a year of bed rest and I managed to hold a full time job down and live most of my 20s and 30s as I wanted. I'm Now 36 and happily married, unfortunately I lost my job 2 years ago due to a bad flare. I'm still suffering now although more under controll, and my consultant was happy for us to try for a baby. A scary prospect!
I just wondered if anybody has successfully had children and had any problems trying to conceive or with pregnancy. feel quite alone and it's so hard for people to understand. I have come off mycophenolate but still on plaquenil and prednisone. Any tips?
Sara Gorman was dx'd with lupus just 6 weeks after she got married. She has gone on to start a business having had to abandon her career in TV and also had 2 little girls. I'm sure you will find a lot of info and tips there - I don't have lupus but I do enjoy her blogs very much.
Welcome to the forum. I hope that you'll find it a great source of information and support.
Good luck with your attempt for pregnancy! There are quite a few members here who have had children and I'm sure they'll share their experiences with you.
In the past we featured a few pregnancy stories as part of our blog. You can read them at the following links;
If you need more information about lupus and pregnancy you can read and download our booklet here - lupusuk.org.uk/wp-content/u.... If you'd like a physical copy of this booklet sent to you in the post, please just send me a private message or email paul@lupusuk.org.uk with your name and address.
This lady has lupus and has recently given birth. I am absolutely in love with her blog and the way she writes, which is pointed, poignant, and humorous.
I have a beautiful 3 year old after being told pregnancy was unlikely. Actually being pregnant was the longest time without a flare up I've ever had. I did develop a kidney infection the day before I gave birth so the delivery was high risk but all turned out well. X
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
New drug treatment for Lupus?
New to Lupus
Lupus SLE suffer
New to lupus - bad facial rash
