Thankyou everybody who has helped advise me about... - LUPUS UK

LUPUS UK

31,716 members28,083 posts

Thankyou everybody who has helped advise me about daughters high school

3 Replies

Thankyou to all who have advised on my last post. It is really amazing that people take time out to help strangers. I have emailed her high school today to request meeting with Head / Deputy Head . I have emailed doctors to request all her symptoms are documented correctly and we plough ahead with finding answers. My daughter managed a full day at school , she couldn't eat breakie , or anything all day until got home , she is suffering but wanted to try her best to do a full day . When someone has so many symptoms it is a long journey , it's a minefield to navigate your way thru on the path to diagnosis, you are in unknown territory and you find your allies and enemies not always where you expect them to be !!!! But my advise to all is keeping going, trust your parental instincts , or gut instincts , and then try to help others from your experiences. Just like people are helping me now . X

3 Replies

👍🏾👍🏾👍🏾x

Lupiknits profile image
Lupiknits in reply to

Go for it! X

johare profile image
johare

Hi please see your last post for my late reply. I hope it helps.

You may also like...

Polymyositis Help please share with me thankyou

have any groups in Scotland help sorry for the rant I just would like some help that's a bit more...

Advice please where to get help re daughters school, possible fine for absence

the high school may impose the first fine , as we can't prove she is ill ! I send her to school...

Can anyone please help me. My 22yr old daughter and I are trying to get a diagnosis. Looking back her first flare up (isolated was age 3).

12 months ago her skin errupted, starting on her head and eventually covering her whole body. GP for

Up date on, just a kind request🤗

the same day, with a visiting nurse a few days for bandaging, and movement. I wish to ask you all...

Desperate times call for desperate measures. First up - B12 injections

\\"We are all out of other ideas\\". I'm so grateful to @[441725] for helping persuade her to...