Credit where it is due: I just saw my respirology... - LUPUS UK

LUPUS UK

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Credit where it is due

whisperit profile image
15 Replies

I just saw my respirology consultant for a review.

I was feeling lousy; barely able to walk unaided from the hospital car park to out patients.

The nursing assistant calling patients in noticed this. She sat me down and pushed me into the waiting area in a chair, and then brought me a glass of water and some wine gums! She even offered to push me back to my car.

In the review meeting my consultant was so helpful. He explained everything clearly and took time to make sure I understood what was going on. I left feeling cheered and cared for.

There's lots of things wrong with the NHS, but this morning, it was completely brilliant.

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whisperit profile image
whisperit
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15 Replies
baba profile image
baba

There are lots of good things about the nhs, but we tend to hear about the bad.

Kevin53 profile image
Kevin53

Little things go a long way in helping people.

Noah's Ark: Everything I need to know, I learned from Noah's Ark.

ONE: Don't miss the boat.

TWO: Remember that we are all in the same boat!

THREE: Plan ahead. It wasn't raining when Noah built the Ark.

FOUR: When you're 60 years old, someone may ask you to do something really big.

FIVE: Don't listen to critics; just get on with the job that needs to be done.

SIX: Build your future on high ground.

SEVEN: For safety's sake, travel in pairs.

EIGHT: Speed isn't always an advantage. The snails were on board with the cheetahs.

NINE: When you're stressed, float awhile.

TEN: Remember, the Ark was built by amateurs; the Titanic by professionals.

ELEVEN: No matter the storm, when you are with God, there's always a rainbow waiting.

Mean-time profile image
Mean-time in reply to Kevin53

RIGHT ON!!!

DaddyzGrl profile image
DaddyzGrl in reply to Kevin53

You just made my day. Literally, I was crying and your words dried them up. I needed that. I have read about the Ark many times, but that just blew me away. Thank you for your inspiration. Thank God for the example. Best wishes to you and I hope you are doing well.

Kevin53 profile image
Kevin53 in reply to DaddyzGrl

Glad it helped. Try a smile too. Best wishes Kevin

Lupiknits profile image
Lupiknits

It can be brilliant, and thank you for reminding us.

PMRpro profile image
PMRpro

There'll be a queue to see that consultant now!!!! Good to hear

whisperit profile image
whisperit in reply to PMRpro

I told him that! He smiled in a kind of "Aw gee shucks" kind of way....

Mean-time profile image
Mean-time

What is wine gum? What WAS wrong?

whisperit profile image
whisperit in reply to Mean-time

Hello Mean-time, Wine gums are sweets (candies). My favourites, as it happens! What was wrong was that I was suffering a reaction to starting mycophenolate. My consultant told me to stop taking it straight away, which was a relief.

in reply to whisperit

Great to learn of your wonderful NHS experience. When it works it's a wonderful feeling.

I find most things about my new hospital very positive. For example the neurologist showed an elderly gentleman how to wheel his wife's hospital wheelchair along by pulling rather than pushing - after he nearly collided with my legs!

Interesting re your experience of Mycophenolate. It took 3 attempts st Azathioprine last year for doctors to acknowledge that I was having a severe reaction to it. Hope your breathing settles down again quickly. X

whisperit profile image
whisperit in reply to

thanks, twitchy,

I was also delighted to hear my lung consultant say that the scan showed some reduction in inflammation, so that he didn't feel it was necessary to add a further DMARD at this stage. However, my other symptoms - eg fatigue and heart - are not so great, so my rheumy might decide otherwise next week. I may yet need your advice on azathioprine soon! x

in reply to whisperit

Hey don't go by me please - I only have to look at a medication and end up with the very worst side effects or allergies listed!! Aza works for many I know and probably would have done wonders for me too if my pancreas hadn't rejected it big time 🙄👹🙃

Mean-time profile image
Mean-time

Thank you for info! I stopped taking it on the 11th of this month after three months of flu symptoms...still feeling effects, but they are lessening, sleeping better also. 👍

maurice1 profile image
maurice1

Great post! We seem only to hear about bad experiences but it's a refreshing change to hear something positive and frankly pretty well reflects my own experiences with the NHS. Well done you for this! You've really cheered me up.

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