Saw Rheumatology nurse on Tues for my results on being able to use Azathioprine. Enzyme levels are good so all systems go. Letter coming out to me & GP within a week explaining all, then once meds started I've been told that it'll be blood test every 2wks for 3 months then monthly after that. Gave me a blood record that my medical centre fill in and I'm to keep hold of. Be interesting as hospital think medical ctr wil hold record fill in then post back to me. Knowing my med ctr just can't see it happening will have bring this up with GP. Also my med ctr like any other isn't up on these types of things so hoping they know what to test for every fortnight. Hopefully it's all laid out on the hosp letter I'm awaiting! Know it's no good stressing but hey ho!
Sometimes it just feels that's it's happening to someone else that you've turned off, yes I know that sounds odd but can't explain it. Get so down, really down infact and find myself to a point giving up & not caring. It's like I've lost the give a toss mode & previously that wouldn't have been me. These autoimmune illnesses really change you as a person. Doesn't help that you have to hide your true feelings and health issues and mostly pretend things are half as bad as they are.
Would love to know if anyone on here has found some form of counselling helpful or if not how you else you may find to cope.
Thanks for listening 😉