anyone know why your gums receed like mad mine are going worse and need 2 back ones out but its taking ages with the dentist who put it in. It feel like i need the lot out now they have receeded the gums that much in a short space of time like 5 months.
And not to ask a stupid question but anyone had to have false teeth through this lupus
OMG: minka, you've read my mind‼️ I've been wondering about us & false teeth too...been listening & learning about this subject for several years now...ever since I had an implant molar put in (YIKES: expensive🙃).
I'm 62 and i''ve got ehlers danlos hypermobility + infant onset lupus + early onset sjogrens ALL of which have given me multiple probs with oral inflammation + lesions + paroxysmal haematomas + gum recession from a vvvv early age. The medic who has helped me most with managing this has been my periodontist. But my lupus & Vasculitis rheumatology clinic chief has always specifically urged me to "take good care of my mouth" , so am meticulous with my day to day oral hygiene + see dental hygenist every 3 months + dentist minimum every 6
Am so glad you asked this ?...and I'll be following this discussion eagerly
Wishing you all the best with your oral horrors 😏
🍀🍀🍀🍀 coco
Hi minka,
I have struggled to keep my teeth and more so my gums healthy for years.Receding gums being the biggy for me.I was finally told ,only recently,it is more to do with my Sjogrens which seems to come as a freebie with lupus and that the lack of saliva which keeps the mouth healthy isn't in enough volume to fight even the slightest gum problems hence the gums disappearing.Apart from being over the top with oral hygiene I have to use fake saliva gel and sip water at stupid frequency to keep my gums and mouth anywhere near as in shape as someone without an autoimmune illness.
Sorry to hear you have this on top of all the other fights your body is having with you .
I now have a denture and am having two more teeth out at the end of September. I had a filling yesterday due to receding gums and consequently teeth going at the neck. I am trying to keep as many as possible as they help keep the denture stable.
My body has also been rejecting the crowns I have - doesn't like the metal pins, I suspect, and receding gums have exposed the neck which decay, of course, due to a bad fit allowing food to get up in the roots and impossible to get up there to keep clean.
I would have had dentures instead of crowns long ago if I had known (would have been a lot cheaper then, too!) I would have so much trouble with crowns because I have long, spindly and twisted roots, so not easy to get out either!
The dentist said the longer I leave it the more difficult it will be to get the last two out and I don't want to risk too much cutting/stitching and infection.
I can only have one anaesthetic due to being allergic to others and only one out at a time, but I am going to risk having the last two crowns and roots removed together as they are next to each other and, hopefully, not so much anaesthetic needed as when the teeth are apart in the mouth.
I do my best to keep calm and not get stressed over it, as that just exacerbates my immune problems and makes everything worse.
I have suffered with excessive bleeding in the past and use hom. phosphorus, but since using have been much better.
I have to have breaks from the denture, but I often wear it for part of the night and take it out for eating when at home because it saves getting food stuck under it and causing infection which I am easily prone to.
I have to eat with it in if out and about, of course, but my tongue and mouth can sting when I need a break from it.
I would never have implants and I wonder if the crowns added to my immune problems because I know the amalgams, I had removed several years ago, were adding to my immune problems. They may have even caused more along with the crowns.
At least with a denture you can have a break at night and in the confines of your home, but crowns and implants are there 24 hours a day possibly causing a stress on the body and they are in the gums whereas a denture outside.
The thought of having a denture is often the problem, too. I dreaded it, but so far has been less of a problem than I expected and I can see I have been quite pleased up to now.
Best to keep the mind occupied on other things and forget you have one - just like hair loss and wigs and hats, glasses - just get on with life and make the most of it.
All the best. Cann
Gingivitis hyperplasia ? is a very rare side effect of some immuno suppressants Have a google of the gruesome mouths and see what you think ?
Just wondered if you had looked at the BSSA (British Sjogrens Syndrome Association) .
There is an information sheet,downloadable,you can read without being a member which states how a large % of people with lupus or RA have secondary Sjogrens and the complications of which state tooth loss.
Might be worth a read if you haven't already.
I am so sorry we have to deal with so many issues. I had a career as a Registered Dental Assistant for about 8 years until I had to go out on disability. From what I have seen in the patients that have dentures is unfortunately the majority of them have issues at one point where they get pressure sores or the worse part is you lose the ridge of bone that use to be there to hold your teeth in. Once you extract the tooth you lose that ridge and the ridge is what holds the denture in place so once this is gone a lot of patients just give up on wearing them cause they don't stay in place at all. It is not as bad if you have a partial denture that has hooks that hold onto the remaining teeth you have but once those teeth go then you have problems. Implants are very expensive but it's definitely the way to go. It is the same maintenance as regular teeth and the great thing is you won't get cavities on them from the dry mouth. There is also the option of getting a few metal type implants in the jaw bone so a denture can snap on to those and it will stay securely in place. Of course each patients mouth is different so a good experienced dentist would have to examine you.
Also you can purchase a prescription fluoride gel from a dentist or maybe online to help with the cavities and issues at the gum line.
Have you read up on the dangers of fluoride? There is so much information about it and in your mouth with immune problems - I don't think so!
According to the NHS website, "There have been some concerns that fluoride may be linked to a variety of health conditions. Reviews of the risks have so far found no convincing evidence to support these concerns."
They have links to the recent evidence available at nhs.uk/Conditions/Fluoride/...
The NHS, unfortunately, is lacking in knowledge including of some of the causes of tooth decay. If there is Dysbiosis or inflammation/IBD for instance, then a lack of absorption of good nutrients can also lead to tooth decay. In such cases, the use of fluoride can have quite a negative affect on the body and health, too, as I know from experience, but we are all different and if someone feels it is right for them to use it, then they must do what they feel is right. I wouldn't use it.
GRRRREAT cleo:🌟🌟🌟🌟this is EXACTLY why I went for an implant when an upper molar's root canal failed...yes the implant procedure cost loads & took months to complete, but, 6 years on, it's holding up well!
I have Vascular ehlers danlos + infant inset lupus + early onset primary immunodeficiency (prior to treatment with immunosuppressants) & severe secondary sjogrens (+ lots of other secondaries) all of which make my mouth vvvv vulnerable...am constantly managing lesions, inflammations, recession despite meticulous oral hygiene. At the time of the implant, I was in my mid 50s and my infant onset lupus diagnosis was in the process of being recovered.
At the time neither I nor my oral surgeon knew much about Lupus...you can imagine his concern when my consultants discovered the root canal had failed 20 years before hand, segueing into pockets of bacteria-driven sepsis resulting in osteomyelitis in the associated upper jawbone...this diagnosis developed just after the final implant appt.
following discover of the osteomyelitis, 5 months on high rose daily oral antibiotics seemed to have sorted me out phew ...I've never regretted the implant, but we are all aware that the molar roots & implant have broken through into the sinus above aggravating prexisting chronic sinusitis...immunology now has me on daily antibiotics indefinitely...it's one of those "taking a view re risk/benefit balance" things 😏
It means a great deal to read your thoughts about implants V's dentures. Thanks so much for all those details 👏👏👏👏
Take care
🍀🌻🍀🌻 coco
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