This Site Is A Blessing!: I just wanted to... - LUPUS UK

LUPUS UK

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This Site Is A Blessing!

lupusforme profile image
10 Replies

I just wanted to acknowledge, HealthUnlocked, I finally found people who understand what I'm going through, and not make me feel like i'm faking or exaggerating my symptoms! Thank you all!

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lupusforme profile image
lupusforme
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10 Replies
littleeffie profile image
littleeffie

Ahh.

You're always welcome here .

Really good bunch of folk who can laugh,cry ,learn and just live life and share thoughts with each other.

It's a good place to find so stick around and join in.

lupusforme profile image
lupusforme in reply to littleeffie

Thannk youuuuu (sing-song)!

calvinia profile image
calvinia

Great I'm from Lupus of Nevada find us on Facebook and Twitter this site is a great support for me as well. Live in Las Vegas

Kevin53 profile image
Kevin53

It's great to see so many appreciating this site. Our thanks to the staff at Lupus UK for their excellent support.

nanleighh profile image
nanleighh

I know! I live in the US and this is the greatest site by far.

lupusforme profile image
lupusforme in reply to nanleighh

Exactly!!

Mimi1950 profile image
Mimi1950

I know what you mean . Unless you are living it you do not know what we feel.

lupusforme profile image
lupusforme in reply to Mimi1950

That's why I am happy here!

Cas70 profile image
Cas70

I have to agree with you, it has helped me greatly. I don't feel alone with it any more or paranoid ! I have Sjogrens as well as Discoid Lupus. I received the latest magazine from the Sjogrens Assoc. and it had message from a lady who like me has interrupted sleep due to a chronic dry mouth. She is now using Xylimelts. Unfortunately not on the NHS or over the counter as made in USA. They can only be bought from The Mouth Ulcer Shop online or call them. They adhere to the gum or tooth and increase saliva. I have sent for some immediately. Please pass this on. Good luck for the future.

lupusforme profile image
lupusforme in reply to Cas70

To you too!

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