Onward, but with your love.: Thank hou my dear ones... - LUPUS UK

LUPUS UK

31,598 members28,008 posts

Onward, but with your love.

Casimir profile image
5 Replies

Thank hou my dear ones on the Other Side of The Pond.

Interstitial lung disease, AND shrinking lung disease, are causing me great pain. Even hallow breathing hurts, and i still feel winded.

I am demoralized, then alternatively, in high spirits knowing that i CAN heal this inspite of Western Allopathic Doctors stating that their is no cure, just management.

Still, i have deep respect for Allopathic Western Medicine, and newer breed of more open minded and open hearted doctors that no longer eschew homeopathic, herbal, or Chinese medicine.

Now, i intuitively feel, this healing journeyof mine will perhaps be a deeper process, and maybe a longer journey than another healing of an "incurrable" that i accepted. Yet, i'm also open to it being instantaneous! Lol!

Read the book, "Dying To Be Me".

This said, people's relationship to any disease is far deeper and personal than one may be able to accept.

I had parents that brutally tortured me physically. Breaking bones, burning, scarring my body. These were my parents. Flesh of my flesh.Their job was to protect me. So, now my own body attacks itself with what should protect me.

I do not imply, this is the sole cause, nor even the cause, but if i am tonhealmit i have to see the metaphor, and why i may be allowing it to be so. Life long remissions happen. I am combinging this with a diet sans gluten, soy, dairy=casien, lots of greens, berries, 4 ounces off meat a serving, lots of bone broth, supplements including D, ashkawanda, glutamine (to heal gut) acidolphillis, HCL + pepsis only with meats, fish oil, tumeric.

I am still on Plaquenil, and meloxicam.

Meditation and prayer. No stress. A d doing all activities with ease.

I am going to really need each and everyone of you, as i do get frightened, discouraged, and hopeless at times.Thank you, those of you who reached out to me.

Much LoveLight.

Written by
Casimir profile image
Casimir
To view profiles and participate in discussions please or .
Read more about...
5 Replies
RhondaB profile image
RhondaB

I am sorry for all you've been through and going thru. Know that you are in my prayers and I hope you find comfort mentally and physically.

Lancslass1962 profile image
Lancslass1962

I'm really sorry to hear about your illnesses and childhood. I too was a battered child so I know what you went through.

My thoughts are with you

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Casimir , I would really encourage you to discuss your supplements/alternative treatments with your doctor. Ashwagandha might cause the immune system to become more active, and this could increase the symptoms of autoimmune diseases such as lupus. If you have one of these conditions, it is advised to avoid using ashwagandha.

Casimir profile image
Casimir in reply to Paul_Howard

Thank you. I will run it by my objective alternative practitioner who cites counterindications and side wffects of supplements as well as of allopathic pharmaceuticals. I understood ashweranga to be calming to the adrenal response to stress, anti cortisol. I was using Tenofin that was an autoimmune regulator, and it worked, up intil recently. Why however would you not warn me off the plaquenil, prednisone, or meloxicam, as they all may have adverse side effects?

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to Casimir

I wanted to provide you with information about the potential adverse effects of Ashwagandha in case you were not made aware of them. Unfortunately not all practitioners of complementary/alternative medicine are fully qualified and certified. In addition, many of these treatments do not have scientific clinical evidence to demonstrate their safety and efficacy in many conditions. I would always encourage people to discuss these treatments with their doctors because they have medical training.

I would not warn you off the plaquenil, prednisone, or meloxicam because they would have been prescribed by your doctor, taking into consideration the potential benefits and risks to your health.

You may also like...

Lupus LOVES stress, rearrange your life to knock out what lupus lives on emotionally.

were guided meditations aimed at self healing, and positive healing and positive self talk (etc etc...

Did your loved ones want you to get a second opinion?

I recently told my parents about my primary doctor referring me to a rheumatologist for further...

Starting cellcept (mycophenolate mofetil) , I would love to hear your experience with this.

Has anyone found love after Lupus?

questions and he ran a mile. Perhaps he wasn't ready to accept me and Lupus or wasn't prepared for...

'Referral Management Fees': how GP's pocket a bonus for NOT referring folks onwards