First rheumy appt yesterday. : So far he has given... - LUPUS UK

LUPUS UK

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First rheumy appt yesterday.

JenInCali profile image
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So far he has given me the diagnoses of Hughes syndrome, Hashimoto's and fibromyalgia. Took 10 more vials of blood today to test for Ana, Sjogrens antibodies and all that other stuff. I suppose what I already have are enough to explain why I feel so lousy.. The last week has been a real bear. I have felt very weak and some days I end up taking 2 naps. Light headed and queasy a lot too. It's weird, about 10 days ago I had the worst headache of my life. I haven't really been the same since. I had a CT scan and it was OK though. It will be interesting to see what the blood work reveals. Im so tired of not knowing what's wrong with me.

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JenInCali profile image
JenInCali
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JenInCali profile image
JenInCali

Thank u for that. Yes I have lupus anticoagulant and ive had 2 pulmonary emboli so I'm on blood thinners for life. I've wondered about Sjogrens because I have VERY dry eyes and mouth. You're info is fascinating!!!!

Footygirl profile image
Footygirl

We all hear you. The symptoms, the wait, the tests, the wait, the appointments...

Well done so far. Hang in there Jen you are getting there. Love Stickybloodmentor' s sense, sensibility and knowledge, a very welcome addition here! Cheers haemo guy!

Good luck Jen for mor answers and treatment

X

⚽️

friars126 profile image
friars126

That's pretty impressive on your first visit. I hope it helps to have some confirmation of what's been going on and I hope that they can give you some medication soon to get you back on an even keel.

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