oncology appointment: Hello all...following on from... - LUPUS UK

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oncology appointment

Barnclown profile image
48 Replies

Hello all...following on from the flying stoat...here is the reclining buck

This yearling roe deer & his lovely twin sister have been chucked out of the herd in Badger's Wood because Big Boy, the Top Buck, wants his does all to himself...meanwhile the yearlings have decided to hang out in our garden where we see them from our windows. One evening last week, this youngster plonked himself down on the lawn...my perfect photo opportunity!

this morning I got a phone call from the secretary to the chief of gyn oncology asking me if I could come in to see him tomorrow...of course I said yes....thinking: ok, so the NHS urgent appointment pathway can actually work. 

so, am looking at this photo, channelling the Zen calm alertness of this yearling buck: What, me worry? 

OK...I can't help feeling on edge...but I'll be just fine because you're all coming into that appt with me...and I'll be remembering everything I've learned here from all of you, my good buddies

🍀🍀 coco

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Barnclown profile image
Barnclown
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48 Replies
misty14 profile image
misty14

Dear Barnclown

Extra special good luck wishes are sent for tomorrow. Knowing you , you are well prepared and it's good you've got less thinking /worrying time as it's so quick!. They found a slot,good to phone as that has happened to me. 

Beautiful photo, so special to have deer in your front garden. 

Fingers tightly crossed 

All the best love MistyX👌🏻😊💚🌟

Barnclown profile image
Barnclown in reply to misty14

thanks so much misty 😘 : you're making this so much easier for me.  am being open minded, and am feeling ready for whatever this appt brings.  my big hope is that this clinic will take over my DES Daughter annual monitoring colposcopies.  These are top specialists at a leading international teaching hospital where i attend my Rheumatology, Immunology and ENT clinics.  I've been referred to gyn oncology here by our smaller local NHS hospital because of my co-morbidities & complexity.  It would be lovely to have all these clinics under 1 roof....even though i have to travel much further to attend them XOXO

misty14 profile image
misty14 in reply to Barnclown

Hi Barnclown

That would be wonderful if they will take over the DES monitoring and makes much more sense to have all your important specialities in one renowned hospital. Easier for you to deal with admin wise and they can talk to one another, no excuses!.

All the best for a good result and let us know how you get on. X

Barnclown profile image
Barnclown in reply to misty14

👍👌✌️🍀💃

trueman profile image
trueman

Good luck. Fingers crossed all goes smoothly and whatever the reason it's simple and straight forward. You've been incredibly supportive and responsive on here to many. Please feel that support is returned.

Everything crossed for you. 

Barnclown profile image
Barnclown in reply to trueman

thanks so much trueman 😘 ...your support means a great deal to me!  XOXO

noonoo52 profile image
noonoo52

Hi coco, have been waiting to see when your appointment was going to be and thank goodness it's tomorrow. As Misty has said you will be well prepared as you are a guru after all. All best wishes for good news, we will await your reply. 

We are here for you coco.

Love and gentle hugs go to you.

noonoox 🍀🍀🍀🌹

Ps. Photo is wonderful it's so beautiful to have that on your doorstep, I think they are there for you, they know you are there for them, again as the Stoat they feel safe in your presence.

Barnclown profile image
Barnclown in reply to noonoo52

thanks so much noonoo 😘 ...the week before last, i had my first NHS urgent pathway appt at the gyn clinic in our small local hospital... the gyn was wonderful...listened attentively and immediately decided i needed tertiary  referral to a big gyn cancer centre....so this is my second NHS urgent pathway appt...i'm certainly finding out how the NHS handles these urgent appts in our region. 

i do feel very lucky to be getting seen this promptly , but it does seem less prompt when you think the problem started in october and it has taken the NHS nearly 7 months to get me to gyn oncology via a process of elimination that started with urology and proceeded via the a Pelvic Multidisciplinary Team gastroenterology and Womens Health Services Physiotherapy to our local gyn-urology clinic.  i know that, like most of us, i'm considered a 'Complex Patient', but now i think my medics and i all rather had our heads in the sand...because really my DES Daughter status should've made us start these investigations at  gynaecology.  easy to recognise with hindsight...

XOXO

Coco,  all good thoughts and wishes for you tomorrow.  You hand out strength to all of us when we're in need and now it's our turn to send strength to you.  

The photo of the young deer is delightful as was the stoat.  Thank you once again.

Blessings for you,

'M'

Barnclown profile image
Barnclown in reply to

Am so grateful for your reply, mabsie 😘 ....am definitely feeling stronger thanks to you all XOXO

in reply to Barnclown

💐⭐️⭐️⭐️⭐️⭐️

Maya23 profile image
Maya23

Wishing you all the best Barnclown. I'll be thinking of you xx

Barnclown profile image
Barnclown in reply to Maya23

Knowing you'll be doing this really really helps...thanks so much dryad 😘 XO

GloomyEeyore profile image
GloomyEeyore

My positive thoughts and good wishes are with you for tomorrow coco. Xx 💐

Barnclown profile image
Barnclown in reply to GloomyEeyore

Many Thanks GE 😘: your replies are making all the diff for me XOXO

Wendy39 profile image
Wendy39

I will be thinking of you tomorrow. Positive thoughts from us all. You've helped so many people on here. Good luck. X

Barnclown profile image
Barnclown in reply to Wendy39

😘 your kind words mean so much to me, Wendy: thanks XOXO

littleeffie profile image
littleeffie

What a little poser that buck is.I am sure it can't have picked that backdrop by accident but you have captured it beautifully.

As for the rest you know my thoughts and wishes x

Barnclown profile image
Barnclown

Exactly: such a little poser!  Classic Effie insight!  👏👏👏 👑🌟😘....

Patricia2015 profile image
Patricia2015

Wish you so much good luck tomorrow!!

And so are all the kind animals who are in your garden to support you as all of us on HU!

Barnclown profile image
Barnclown in reply to Patricia2015

Thanks so much Patricia 😘 you're so right: they're out there doing their best to survive in this strange world, this strange era of ours...much as we all are....XOXO

Footygirl profile image
Footygirl

Holding you in my heart all day tomorrow.

As many have said, back at you guru.

Much love

🛫❤️🌹⚽️

Barnclown profile image
Barnclown in reply to Footygirl

& You're all my gurus: we never stop learning, right?  Knowledge is power 😘👍👌

Asarahjohnson profile image
Asarahjohnson

Will be thinking about you

Barnclown profile image
Barnclown in reply to Asarahjohnson

😘 Thanks so much asarah

I've only just read this but I'm on my way through cyber space to be in your pocket (would that I'd fit!) for tomorrow. Hugs and more hugs for you Coco xxx

Barnclown profile image
Barnclown in reply to

Gotcha in my pocket twitchy: a cunning plan 😘

cuttysark profile image
cuttysark

We are all there for you today dear Coco , and sending positive thoughts. 

C xoxo

Barnclown profile image
Barnclown in reply to cuttysark

You all help me such a lot...every pos thought makes a pos diff, thanks cutty 😘

diane1428 profile image
diane1428

Hi coco

We most certainly will all be with you.

You are amazing to have completed the walk.  Well actually let's rephrase. You are amazing to have even considered the walk.

As for your reclining deer he is beautiful.  I think I'll share him with you if that's allowed.  Going to the hospital myself Friday so I'll keep a picture of him in my mind

Best wishes. Diane😜

Barnclown profile image
Barnclown in reply to diane1428

Perfect: this young fellow is here for all!  Wishing you every best wish...will be especially thinking of you this Friday, diane 😘

Penelope-Mary profile image
Penelope-Mary

Oh coco, he's beautiful ! What a treat! 🌲🌳🌿🍀, what a simply amazing garden 😍.

And our dear leader, we are indeed accompanying you to this urgent referral. Feel the 💛.

Hugs from afar

Penelope

Xx

🐠

Barnclown profile image
Barnclown in reply to Penelope-Mary

Like to think you'll be sweet dreaming 💤by the time I'm @ the consultation...now there's a happy imagining!  Many thanks Penelope 😘

Penelope-Mary profile image
Penelope-Mary in reply to Barnclown

Actually just checked London time and was about to send cheerful wishes to you ! Dinner time here but ☕️🍞🍯 for you . ALL THE VERY BEST COCO. 

🚙💨💨💨💨😷👍🏼💙

Love, Penelope

🐚🐚🐚🐚

Barnclown profile image
Barnclown in reply to Penelope-Mary

Yep: just finished breakfast...this morning the flying stoat is putting on a big show for us...lots of entertainment out the kitchen windows...not sure why he was surfing the lawn: maybe after worms in the dew?  

I leave for clinic in 1 hour...the appt is just past midday...feeling really good thanks to you all & badger who is heading out to work in the wood 

👭👭👭👭👭👭👭👭😘

Penelope-Mary profile image
Penelope-Mary in reply to Barnclown

Painted a serene picture in amongst a lot of paddling fast under water , I'm sure of it , coco 🐦🐦

Full report please.

Penelope xxoo

👩🏼

Circles profile image
Circles

Good luck with your appointment Coco. Hope all goes well for you.Will be thinking about you,picture is so lovely.Hugs and hope for you.Circles xxx

Barnclown profile image
Barnclown in reply to Circles

Many thanks circles...am hugging you back my friend 😘

KarenC profile image
KarenC

Only just read this dear coco, all my hugs and best wishes to you my friend for the best outcome today.

Your beautiful pictures always cheer me up, I am sure the stoat and the deer help you to, take care xxxxx

Barnclown profile image
Barnclown in reply to KarenC

Thanks so much Karen...there's something Magic about photography! 😘

Barnclown profile image
Barnclown

👍👍👍👍👍 JUST had the big appt.  I think he's a good guy... & seems a good communicator....+ a True Detective...he ordered an MRI, took swabs etc, will do colposcopy next & IS taking over my annual DES monitoring.  He looked very thoughtful, but not unduly alarmed (yet)

You're all my 🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟👭👭👭👭👭👭👭👭👭👭👭

SENDING YOU A MILLION 😘S

And every 🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀 wish 

THANK YOU 👏👏👏👏👏👏👏

noonoo52 profile image
noonoo52 in reply to Barnclown

So glad he's a nice consultant, it sure does help. I hope the MRI is not too long in the future dear coco, I hope you are feeling ok and try and relax this evening, you are finally getting somewhere with this. Keep us posted and when you get the appointment next so we can all be with you.

Take care and little hugs.

noonoox 😄 xxxxxxxxx

Barnclown profile image
Barnclown in reply to noonoo52

👌👌👌👌😘😘😘😘💤💤💤💤

MrsMouseSJ profile image
MrsMouseSJ

Hi coco.  Recovering from an op so I haven't been online really for the past few weeks.  Have just seen this.  I really hope that things went ok for you at your appointment and I hope you will post and let us know how you are doing.  Meantime, sending you very best wishes and a hug.

Lovely photo!  I looked back over your recent posts and found the stoat, too.  How lucky to live somewhere which attracts such interest from wildlife!  

Barnclown profile image
Barnclown in reply to MrsMouseSJ

Oh, mrsmouse: am hoping your recovery is going smoothly (& quickly) 🌷🌷🌷🌷🍀🍀🍀🍀

Many thanks for your reply...sending you a hug in return, from all of us here at Badger's Wood: the flying stoat, the reclining Buck...and all the rest 😘

Barnclown profile image
Barnclown

PS

Had my 4th NHS Pelvic Multidisciplinary Team Women's Health Services Physio appt yesterday...she was as attentive & generally perfect as ever + filled me in on more details re the clinical characteristics of the symptomatology that has slotted me into this NHS urgent pathway.  She is writing a report & copying it yo all involved inc me

Then this morning the MRI dept phoned to ask if I could come in tomorrow for the pelvic MRI: of course I said yes 👍👍👍👍...that was FAST...the consultant only ordered this MRI the day before yesterday...

So, on this goes 💃💃💃💃

misty14 profile image
misty14 in reply to Barnclown

Hello dear Barnclown

So pleased your Physio appt went well and was helpful. Wow!. MRI tomorrow, great use of resources by NHS!. GOOD LUCK for it and thank goodness things are happening quickly for you now. Sending healing hugs

Misty👌🏻💐😊

Barnclown profile image
Barnclown in reply to misty14

😘😘😘😘😘😘...badger wants to take me to the MRI ☺️☺️☺️☺️☺️☺️

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