Rash: My body is exploding with this rash, looks... - LUPUS UK

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Rash

molly19 profile image
33 Replies

My body is exploding with this rash, looks like targets, not itchy, mostly on torso.

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molly19 profile image
molly19
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33 Replies
Chris21 profile image
Chris21

Ooh, they look sore? Hope you've made appointment to see what doc says and get something to put on them. Our bodies react in such peculiar ways!

molly19 profile image
molly19 in reply to Chris21

Seen Dr. I've got betnovate cream, Dr also took a scrapping to send of, he thinks it's lupus rash, as my face a mess with butterfly rash which is angry just now to.

Chris21 profile image
Chris21 in reply to Chris21

Hope the cream helps. Whenever I think I know all about lupus something else comes along ......seems never ending x

Polly2Cats profile image
Polly2Cats

Oooh that looks angry. Suggest taking plenty of photos including some close-ups - my rheumatologist loves photos says they are so helpful. Best wishes 

molly19 profile image
molly19 in reply to Polly2Cats

Thank you my Dr took some.x

Barnclown profile image
Barnclown

hope you'll see your gp about this asap...this is the kind of thing that needs to be examined and investigated pronto🍀🍀🍀🍀

molly19 profile image
molly19 in reply to Barnclown

Thank you, seen Dr he took a scrapping and sent it of, thinks lupus active as my face is a mess with angry butterfly rash, and very fatigued. But how are you, your so much worse, please you take care also. Hugs x

Barnclown profile image
Barnclown in reply to molly19

👌👍🍀😘

Tiras profile image
Tiras

Yes I get these also. Nothing one hour, then rash next hour. I get them on arms, I'm a guy I also get them  on and around privet areas, & feet. They do not burn or itch just show up! I have had some of the lupus blisters also, come from pubic area to upper thigh, some of those have left scars. I have also lost body hair, I have no body hair from from under arms down, I have no pubic hair, nothing on legs I don't even have hair on my toes. Doctors tell me it is from lupus. (On a lighter note, my wife says the body hair loss is the only thing she would want. No more shaving she says)

molly19 profile image
molly19 in reply to Tiras

Poor you also, yes they don't itch just there, but embarrassing. Dr gave me betnovate, and took a scrapping to send away. All the best to you.

charmaineholmes profile image
charmaineholmes

Looks sore get it checked .I had rashes that's how I got diagnosed but my time they sorted them it has scared my sin so don't leave it see gp x

molly19 profile image
molly19 in reply to charmaineholmes

Awe that's not so good scarring you, Dr gave me betnovate to try. X

Cann profile image
Cann

I would say get it checked out, but from my own experience doctors are as baffled as us these days.  I have rashes on my fingers - itchy, bleeding and we have been having a gas works detoxification all winter quite near within  a mile, I am wondering if, because I do the garden, (although I wear gloves, but this wouldn't stop all contamination),  it is some form of reaction to it.  I expect you are reacting to something - it is knowing what and how to eradicate it. Good luck - at least you say it's not itchy - one good thing. 

molly19 profile image
molly19 in reply to Cann

Seen Dr got betnovate cream to try, he took a scrapping to send away. He thinks lupus active as my face is a mess with butterfly rash. Yes glad not itchy. 

Cann profile image
Cann in reply to molly19

I was prescribed betnovate cream for my fingers years ago, but then it stopped working - I was prescribed another cream which was the base of all creams, can't remember the name and that helped - something like a placebo effect, I guess, but then it stopped being available.  Hope yours clears.

molly19 profile image
molly19 in reply to Cann

My skin rash is still spreading rapidly, betnovate not done anything like you said with yo u r rash. X

Cann profile image
Cann in reply to molly19

The cream I was trying to remember was ultrabase.  I went into the chemist and asked, but they have to order it.  The pharmacist suggested diprabase, but when I got home I found it had lots of nasty ingredients - like paraffin, sodium hydroxide (I think this is caustic soda-help! couldn't put that on my skin), so wasted my money!

I am  now putting olive oil on nightly to see if that helps and the itching and bleeding is improving, but know I have a way to go yet.  Some say coconut oil helps, but I muscle tested that and my muscles were weak - should have tested the diprabase!

The olive oil seems to stop the skin drying out so much and lessens the redness and itching.  I knocked one of my fingers as you always do when something is painful and it bled, but is improving now.  Hope yours does, too.

molly19 profile image
molly19 in reply to Cann

Yours sounds dreadful, I feel for you that must be sore,  hope something works for you too.

noonoo52 profile image
noonoo52

Hi, not sure there is something called Pityriasis rosea, look under nhs.uk/Conditions/Pityriasis-rosea if not try dermanetnz.org/viral/pityri...

If you have had a cold, cough, sore throat or upper respiratory infection can be linked to systemic symptoms.

Good luck and hope you feel better soon Molly.

Nx

molly19 profile image
molly19 in reply to noonoo52

Hiya seen Dr he has taken a scrapping to send of, he thinks my lupus is active as my face a mess with butterfly rash. Not had cold or virus, usually my hydroxyquine keeps my skin better.x

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi molly19,

Have you discussed this rash with your doctor? 

If you would like more information about skin involvement in lupus you can download or view one of our booklets at lupusuk.org.uk/wp-content/u...

molly19 profile image
molly19 in reply to Paul_Howard

Yes doctor has gave me betnovate cream, use twice daily. He also took a scrolling to send off. Lupus is so strange.

molly19 profile image
molly19 in reply to molly19

Scrapping I mean.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to molly19

I hope that the betnovate cream helps. Let us know how you get on. 

molly19 profile image
molly19 in reply to Paul_Howard

I will thank you.

molly19 profile image
molly19 in reply to Paul_Howard

Betnovate hasn't worked so Dr.  Has taken photo's to send to rheumatologist and lupus clinic, rash still spreading all over me.

Mrs-h profile image
Mrs-h

I know about those I have fist sizes on several parts of my upper shoulder blades, back of neck, scalp and peel like snake skin, feel like needles from the pain and itch like crazy. I brought some Vaseline Intensive care deep healing serum lotion it help keep the dryness give moisture to my skin. But that only a temporary release.

molly19 profile image
molly19 in reply to Mrs-h

How awful, mine don't hurt or itch thank goodness, got betnovate cream so see how it goes, take care.

Hesta profile image
Hesta

I had exactly the same. Woke up one morning after scratching skin all night!! Covered in urticaria rash. Gp said it was lupus attacking my skin. Put me on antihistamines. It went after few days xx

molly19 profile image
molly19 in reply to Hesta

That's great your skin improving, mine not itchy thank goodness but is still spreading rapidly steroid cream doing nothing. X

Ameerah profile image
Ameerah

Hi Molly! I don't have lupus but I had the exact same rash on my arms and legs, itched like crazy and the lesions kept increasing 😖 I went to all sorts of doctors and got all kinds of diagnosises! Turned out, I contracted a fungal infection from my new pet cat who had bald patches. If your doctor can't find a reason, you should talk to your dermatologist about it. Good luck n hope you recover soon! 

BexeT profile image
BexeT

I have a rash/bruises like this too! Started taking methotrexate 6 weeks ago and doc thinks it could be caused by this, called Steven Johnson syndrome. He's speaking to a dermatologist and getting back to me. I don't think I can add a photo in a reply but the start as a red blotch, then turn into a red target circle and purple in the middle. Hot to touch and sore like a bruise. In the meantime I have to stop mtx. 

X

molly19 profile image
molly19 in reply to BexeT

I'm so glad mine don't itch, but yes they start like a small dot and grow then the central part changes colour, I've had lupus since age 14 , now ( 53 )  on prednisolone, azathioprine, hydroxyquine,vitamin D.   Thank you for your response.  X

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