First IV infusion today!!

[LillyAlfie]

So had my first IV infusion today! Feeling pretty good about it! We did it over 6hours! I was just wondering if anyone felt portly after it ie flu and ache's and pains?! My arm is dead and didn't know of that is normal too?! I had IV because of my discoid on my face and I also have SLE too!

[Barnclown]

Glad you're feeling pretty good👏👏👏👏

What med was in your infusion?

🍀🌻 coco

[LillyAlfie in reply to Barnclown]

Rituximab I had. I'm praying it works lol! Can not go on feeling the way I have! Been ill since Feb now! X

[Barnclown in reply to LillyAlfie]

Wishing you all the vvvv best results from this🍀🍀🍀🍀🍀🍀. Please let us know how you get on XO

[misty14]

Hi lilyalfie

What treatment was the IV infusion?.

Hope it works for youX

[LillyAlfie in reply to misty14]

Rituximab! Have you had an infusion before x

[misty14 in reply to LillyAlfie]

Hi lilyalfie

I've had bone strengthener ones not Retuximab. Do hope it works for you, impressive rash you have. X

[Whathappned]

Never had to go through this chuck.

But from giving people simple injections I understand the type of reaction your having sounds normal. So as long as it's not too bad I'd expect it. Otherwise if your in any doubt you get back to the medics and ask!

I hope it has good effects and you feel a bit more "normal ( whatever that is) soon

Xxxx

[Terrier_Lady]

I have Benlysta infusions every 3 weeks. It's specifically for SLE. Yes you can feel flu like after and I'm very achy for the next few days and my arm would hurt a lot too and feel week. I just had a port put in almost 2 months ago now because my veins were becoming too damaged and painful. Had one infusion thru the port. I like it a lot better. Something to consider if you end up on long term infusions like me. Really hope this helps you. I'm still not functional but the infusions make life tolerable for me.