How can diagnosis be so hard...: I can't understand... - LUPUS UK

LUPUS UK

31,602 members28,008 posts

How can diagnosis be so hard...

missymystique profile image
5 Replies

I can't understand that I am being told I am ok after many appointments with many rheumo's, internal specialists, gp's and everybody is telling me to see a psychologist.

My symptoms are:

-positive ANA (became positive lately)

-hair loss, extreme

- Raynaud's

-chest pain

-night sweats

-hashimoto thyroid

-skin rashes with sun

-butterfly rash (I was told this could be rosacea)

-numbness and tingling hands and feetl

-livedo reticularis

-chilblains lupus (a skin disorder not a type of systemic lupus)

They won't diagnose me because I don't have joint pain. I am just wondering if there is anybody out there without joint pain.

Written by
missymystique profile image
missymystique
To view profiles and participate in discussions please or .
5 Replies
misty14 profile image
misty14

Hi missy mystique

Don't give up the fight, you are obviously I'll

It can be a long battle to diagnosis but you will get there.X

missymystique profile image
missymystique in reply to misty14

thank you xx

onamission profile image
onamission

Hi missymystique I have just read your symptoms which I have most of them but I notice you have pins and needles in the hands and feet. I'm going in hospital on Tuesday to have a operation on my arm because of this.

I saw a guy who did blood tests on me I was covered in bruises and had the rash on my face when I saw him but because my bloods came back ok he didn't know what it was then asked me if I take steroids I have COPD and he put all my symptoms down to the steroids.

missymystique profile image
missymystique in reply to onamission

good luck with the operation!

onamission profile image
onamission

Thank you

You may also like...

Advice needed with Diagnosis

is the malar rash across my face and almost blister looking rashes on any exposed skin. I booked...

How do I get a diagnosis?

diagnosis of Lupus? I was diagnosed with Fibro ten years ago and the rheumy didn't think it was...

So, how did people here get their diagnosis?

years. Longer if you count my stroke, migraines, joint problems etc. 9 years ago I had a strokr....

How can I persuade my rheumy to take me seriously?

constant pain now, I can't go out in the sun at all (even when overcast it's bad), I have a...

new to lupus and diagnosis: pain and what to do!

Hello, I have been diagnosed with lupus from a skin rash I get with the sun. However I am currently...