Conversation of cure for lupus

[Nikhilindia]

I had a lot of chat with my rumhy he toled me that lupus cure is on the way and it has been discovered and they are trying for clinical trails in Florida. Is this true guys I know I am curious about the cure but I want to know is this true

[Hidden]

Hi Nikhilindia,

I would take this info with a pinch of salt. I think if a cure had been discovered we would all know! Certainly our experts on Health Unlocked/Lupus Uk would have told us about it. There may be clinical trials going on for a cure in Florida, but I think a lot of clinical trials are going on in lots of places. You should try asking him for the details of this so called 'cure' and who is doing the trials.

I think that as there are so many complex issues with lupus a cure isn't going to be easy and to tell a patient that a cure is on its way is a bit irresponsible. It gives you false hope! One day hopefully there will be a cure so keep being positive!

[Nikhilindia in reply to Hidden]

Yeah it is even on net about the diabetic drug which had cured lupus in mice and they are about to conduct clinical trails and it is even on university of Florida and even on net too

[Hidden in reply to Nikhilindia]

thanks for that will have a search. i cant help thinking how strange it is to diagnose lupus in mice when there is so much debate

on how to properly diagnose in humans. its not as if the mice can explain how they are feeling! scientists eh! lets hope the clinical trials find a cure.

[Hidden in reply to Nikhilindia]

sorry for my cynism but after teaching research for several years i believe it when i see it!

[Fighting]

I think this is the testing that Ross replied to a couple of days ago. There was some sensationalism in the article and she felt they were playing with people's hopes.

[kittykat68]

Hi have u got a link to this, id be interested to read it as to my knowledge benlister has to many side effects on humans

?? Ty

[L-2day4u]

Here's a WebMD article tying lupus to low levels of vitamin D another article said that vitamin D was used as "an effective lupus treatment in animal models."There's something to all this and I'd Google it, but the immune system is complex! For example, perhaps something that causes lupus patients to be photo sensitive also causes them to stop getting D from sun properly... It is iften related to GI problems and the esophagus in particular. Any medical cure will probably involve more than one approach. But since I've had lengthy remission, here goes (hope this sample is okay)

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Vitamin D Deficiency Linked to Autoimmune Diseases

Study Also Shows Lack of Vitamin D May Also Be Linked to Some Cancers

By Salynn Boyles

WebMD Health News Reviewed by Laura J. Martin, MD

WebMD News Archive

Aug. 23, 2010 -- There is now biologic evidence to back up the belief that vitamin D may protect against autoimmune diseases and certain cancers.

A new genetic analysis lends support to the idea that the vitamin interacts with genes specific for colorectal cancer, multiple sclerosis, type 1 diabetes, and other diseases, says Oxford University genetic researcher Sreeram Ramagopalan.

The study is published in Genome Research.

When Ramagopalan and colleagues analyzed the binding of vitamin D receptors to gene regions previously identified with different diseases, they found evidence of increased binding for multiple sclerosis, Crohn's disease, lupus, rheumatoid arthritis, colorectal cancer, and chronic lymphocytic leukemia (CLL).

"Genes involved in autoimmune disease and cancer were regulated by vitamin D," Ramagopalan tells WebMD. "The next step is understanding how this interaction could lead to disease."

Slideshow: Amazing Vitamin D, Nutrition's Newest Star

Role of Vitamin D Supplementation

The role of vitamin D supplementation in preventing these diseases is also not well understood.

Exposure to sunlight is an efficient way to raise blood levels of vitamin D hormone, and food sources of the nutrient include oily fish like salmon, fortified milk, and other fortified foods.

But most people would have a hard time getting the vitamin D they need from food, and the increased use of sunscreen has reduced sun exposures.

By one recent estimate, as many as half of adults and children in the U.S. were deficient in the vitamin.

Current recommended daily vitamin D intake is 200 IU (international units) for those up to age 50; 400 IU for people 51 to70; and 600 IU for those over 70. Most experts say that these doses are too low.

Many experts, including Ramagopalan, say 2,000 IU of the vitamin may be optimal for preventing disease.

Blood levels of the vitamin are measured as 25-hydroxyvitamin D. Levels below 20 nanograms per milliliter are generally considered deficient.

Harvard School of Public Health nutrition researcher Edward Giovannucci, MD, says blood 25-hydroxyvitamin D levels of between 30 and 40 nanograms per milliliter may be about right for reducing the risk of autoimmune diseases and certain cancers.

While he says some people can reach these levels without supplementation, many others would need to take 1,000 to 2,000 IU of the vitamin a day.

"Based on what we know, I think it is reasonable to recommend that people maintain blood levels of around 30 nanograms per milliliter," he says.

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