I was diagnosed with inflammatory arthritis in 2009. My rheumatologist believed I had seronegative SLE. Due to the hospital being a long distance from my home, I was referred to my local hospital. My current rheumatologist feels that my joint erosions indicate an aggressive seronegative rheumatoid arthritis. When she was on sick leave, I saw her colleague who queried SLE again and felt it was likely I have SLE in addition to RA. I saw my usual rheumatologist who said the tests are expensive (!) and that if they were negative once, there was no point in repeating them. She said, whatever the 'name', the main concern is that we are controlling and managing the symptoms. As it happens, I get very good treatment and I'm on methotrexate, leflunomide and humira which has dampened down the majority of my symptoms, although I'm still not as good as I'd like to be.
I have regular blood tests and my kidneys are working well. I also have yearly ECGs. I am being well monitored and have no major concerns about my treatment or diagnosis. There's just this niggly little part of me that wonders if I should push for a formal diagnosis.
Any thoughts would be much appreciated. Thank you.