Hi there Everyone!
I sure feel your pain! I started out with hand, thumb, ankle joint pain and swelling. That progressed to elbow,shoulder and hips. Our family physician thought I had RA, but all test were negative, he sent me to a Rheumatologist, anyway. Many drugs and tests later, she pronounced me RA seronegative. Started me on Gold shots, antiinflamatories, prednisone. 5 months later, I thought I was cured. I still had small flares, then 4 years later, agonizing, burning pain in my feet and toes. My toes and toe nails actually turned bluish black. After spending a few days in the hospital, tests, high doses of steroids. . . I was sent to a neurologist, he said I had perepherial neuropathy, either as a companion to the RA or another overlapping connective disease. I also went to the University Hospital to the head of Internal Medicine. He couldn't rule out an overlapping connective disease as my ANA was speckled, but thought maybe it was from the Gold shots, as gold like any other heavy metal does bad things to our bodies. He also Dx me with SLE. 20 years and more flares and drugs than I want to think about. . .I still have joint problems, and a chronic neck pain which radiates to my shoulder blade. MRI is clear, I'm on a biologic for the RA, 20 mg of prednisone maintainence dosage, muscle relaxers, pain meds, as well as regular epidurals, nerve blocks, a Prolia shot @6 months for osteoporous. I'm told I have fibromyralgia. I still have flares, I had a pnemothorax in 2013, spent a month in hospital, had 2 surgeries, the lung docs said together with my smoking, the methotrexate and the biologic had destroyed my lungs. Now they have added post thorasic surgery syndrome to my growing list of ailments. Guess what? Still have the severe neck pain and my 40 yr old son is having same issues. Ice packs, pain meds, muscle relaxers and pain meds are the best for the nerve pain.
Despite my long history, does anyone have any ideas as to what this neck pain is?? Has anyone had anything similiar? Anyone have any home remedies?