Hey everyone

[sim48]

Hey everyone my name is Seema I'm new to all this. I'm looking for some advise I was diagnosed with lupus about 4 years ago I'm on medication but still experience a lot of symptoms. But for the past couple of days iv had swallon toes that are itchy and red any ideas what this may be oh I also suffer from Raynaud's but its never been this bad. Thanks guys in advance xx

[Paul_Howard Partner LUPUS UK]

Hi Seema,

What medication are you on at the moment? Have you mentioned to your consultant that you feel your symptoms aren't being well controlled by it?

It would be a good idea to go to see your GP about your toes. If it is your Raynaud's then they could advise something that could help prevent further attacks.

[sim48 in reply to Paul_Howard]

Hi Paul I'm on methotrexate, naproxen, hydroxychloroquine, perdisalone and eye drops. I'm due to see the specialist soon so will discuss this with him. When I saw my specialist last I felt that he was not very understanding didn't really listen thanks for your input Paul xx

[Paul_Howard Partner LUPUS UK in reply to sim48]

I'm sorry to hear that you feel your specialist isn't giving you very much attention. It can sometimes help to go into the appointment with a list of a few bullet points (either questions or aims) that you want addressed by the end of the session, as it can help give focus. Let us know how you get on.