As anyone had IVGG or Benlysta to treat lupus and if so did it help?

[Signat]

[tremarel]

Hi there I'm on subcutaneous immunoglobulin infusions every week is that what you mean ? I've been on infusions for 8 years now. I was having life threatening infections with the lupus . It has calmed it down no end . My. IGG's were very low & wasn't fighting anything. They not sure with me was it the lupus causing it or all the drugs I've had for many years . Being on steroids over 30 years doesn't help also I am a kidney transplant patient . I so hope this is of some help to you signat

All the best to u God Bless

[Fernabell]

Currently receiving Benlysta monthly infusions. Started taking 8 months ago. Has helped decrease painful joints. Have been able to decrease prednisone.

[Paul_Howard Partner LUPUS UK in reply to Fernabell]

Hi Fernabell,

If possible, would you be able to share your experiences of having Benlysta by completing our anonymous survey at surveymonkey.co.uk/r/SMCLUP... please?

Thank you.

[Yindaabee]

Have had both and unfortunately both didn't work for me.

[Paul_Howard Partner LUPUS UK in reply to Yindaabee]

Hi Yindaabee ,

If possible, would you be able to share your experiences of having Benlysta by completing our anonymous survey at surveymonkey.co.uk/r/SMCLUP... please?

Thank you.