So I went to see my rheumy yesterday and he spent a long time with me discussing all my symptoms and my latest flare up. He has now decided that I have fibromyalgia as my main disease with secondary sub-cutaneous lupus, systemic vasculitis and pernicious anaemia. I am so confused as I have spent the last 9 years thinking lupus was my main cause of all my symptoms?! Consequently he has stopped all my meds and has suggested that he doesnt need to see me again unless I feel my symptoms have changed in which case I can refer myself back at anytime. I am just really confused about all the conditions and my latest flare has lasted for 6 months now with no let up. Has anyone else got a similar diagnosis or situation? Thanks Rachy x
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