emptiness...: When my doctor says that... - LUpus Patients Un...

LUpus Patients Understanding and Support

3,419 members1,257 posts

emptiness...

Empty_mind profile image
2 Replies

When my doctor says that I have Lupus, I feel like I'm lost and empty.. but hey LIFE GOES ON! ;)

Written by
Empty_mind profile image
Empty_mind
To view profiles and participate in discussions please or .
Read more about...
2 Replies
lupus-support1 profile image
lupus-support1Administrator

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

Ros

Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

lupus-support1 profile image
lupus-support1Administrator

Harry, there is no cure. Doctors have not found a "cure"and it is unhelpful, if not cruel, to tell someone there is a cure.

However, over the last 50 years, there has been major developments. There is better diagnosis and better treatment. Many patients come off drugs all together. Patients can lead a normal life, get married, have children with the same life expectancy. This applies to the majority. It isn't all doom and gloom.

The most important factors are: have a lupus specialist as your doctor. You also need support, especially psychological support from your family and friends. Talking to a therapist is also helpful.

You may also like...

Does anyone else find taking a shower hard?

shower seems like such a chore and so much work.I know it is because I have no energy and I feel...

Lazy or Lupus or depression

Don't understand Lupus results

they now say i have factor xll. When they said I had Lupus they brought in the top Doctor from the...

It feels like there sun is killing me

don't help and I'm starting to feel isolated cos I can't go out during the day. If I do when my...

How can these horrific pains be invisible

memories. I forget thing like I put my pills up because I have a baby. I lost them 5 min layer I...