Hi Lupies! I just wanted to reach out and share my story. I was recently diagnosed with lupus with past summer. August 2014 and went through a very trying time with my faith and with my health. I never knew this could be a real situation. Although my sister is fighting lupus, I still didn't understand the illness until it attacked my body.
Lupus can certainly take a toll on your mind and body.
Now I am learning so much more about lupus and how it affects the body and mind. I'm thankful that I am not alone and am here to support those who are battling the disease.
Written by
BrittneyP
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Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.
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Sometimes we need to talk to people who understand and who are not family or friends.
With good wishes!
Ros
Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.
I was diagnosed in July 2014 with SLE and then with Sjogrens in September 2014. I now also have APS. I knew nothing about AI disorders prior and yes, they do take their toll on the mind and body!
Some days, I get very frustrated with my new "normal" and I long to be the woman I was before I got sick. I am thankful for the good days.
This site has been a godsend to me! The folks here are amazing - willing to share experiences, knowledge and a shoulder. We all need help to cope! I never really thought of myself as a lupus warrior but I guess I am since I fight it every day. My husband is my biggest supporter (along with my sisters and close friends) and his humor gets me through. When I was first diagnosed he bought me a vintage "Froot Loops" t-shirt! I just had to laugh! He even bought one for himself and wears it proudly. He's a keeper.
Thank you so much for reaching out and sharing your story! It's amazing feeling to know you are not alone and isolated! Trust me, I have felt both. I'm praying for everyone here and hope to overcome!
You can read my profile for the FULL story. It has been quite a journey! I learn more about my APS diagnosis next week and how it all fits in. Sigh. I just want to be healthy! Keep the faith!
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