Hi, i have lupus of the skin which i was diagnosed 3mths ago, I find it quite hard avoiding the sun and i have even bought a hat though i am not a hat person, i have even started to buy UV protection clothing which i find quite expensive. I plaster myself in 50+ sunscreen each day my work colleagues will soon call me slippery Sam with all this cream.
i am a little worried to how i am going to manage when i go to Austin in USA.
in September.
any advice please
Madhead
I'm a discoid lupus suffer!
I have been for about 15 years! X
No one can avoid the sun! X
You are doing everything right!
I advise you to go to your go and ask for Sun Sense factor 50+ broad spectrum lotion... Or you can buy it on line.... It's the best out there ... And you don't look like you've just slapped a load of lard on your face! Ima woman....so you can imagine.. Xx
Just make sure you wear you large brim hat , denim and thick linen shirts with lotion underneath.... Plenty of fluids!!
Make sure you wear shades for the eyes as they will be sensitive as well! I went to grease for 2 weeks! Stayed in the shade , and rested! I had a great time! You will be fine! Just look after yourself! X unfortunately you can kiss goodbye to suntans! X xxx
How are work with you? Are they helping??
I wish you well.... X
Hi thank you for the advice, work does not know only my colleagues and they are quite sympathetic to my condition. i don't have other problems other than what my skin shows, i work for the NHS front line in a clinic so i do feel conscious of the marks on my face and arms as they are on show.
I know i have to wear long sleeve's and i do but some times show some of my arms in work as it gets too warm.
Do you think fluorescent lights have an effect on the skin? i looked it up on the web site and it mentioned this.
I will check out the sun sense factor 50+, thanks.
I wish you well---