Waste of time: Well that rhematologist... - LUpus Patients Un...

LUpus Patients Understanding and Support

3,413 members1,254 posts

Waste of time

pjsmith0700 profile image
6 Replies

Well that rhematologist appointment was a complete waste of time. ....lost my ana results....different specialist who just kept saying but u haven't got rheumatoid arthritis. ...yea I know that. ...its sle! !!!!..but bloods came back inconclusive. ...yea but not negative! !!!!! Can u see were this is going guys!!!!!!!....can not believe they have lost the main bloods..

.so now had to have them repeated. ..then he tells me my right knee looks bigger than the left....took some fluid to have tested and gave me a steroid injection! !!!!! Why?????.....roll on 4 months when hopefully get to see my original consultant.......so all In all I'm back to square 1....great eh!! Rant over

Written by
pjsmith0700 profile image
pjsmith0700
To view profiles and participate in discussions please or .
Read more about...
6 Replies
lupus-support1 profile image
lupus-support1Administrator

You have every right to be angry! May I ask who is your consultant?

It sounds as if this doctor had not read your clinical history properly and has not shown you any empathy whatsoever. This reflects the problem of a busy clinic where junior doctors have to get through large numbers of "patients" so you are just another patient.

I am sorry you have had such an experience and telling you that your story is common does not help you one iota.

If you want to talk more, please consider joining the LuPUS Message Board.

With good wishes,

Ros

Swildee profile image
Swildee in reply to lupus-support1

Where are you? And where were you seen?

pjsmith0700 profile image
pjsmith0700 in reply to Swildee

I'm in East Yorkshire. .was seen at Bridlington hospital. .my usual rhemy man is Dr al saffar. ..can't remember thus guys name..brain fog...He wasn't interested in lupus. .just the fact I didn't have rheumatoid arthritis. .I know that....isn't lupus auto immune system diease? ????....think I'm going to ring Dr al saffar secretary and request an appointment with him only....Thanks for taking time to read my rant x

pjsmith0700 profile image
pjsmith0700 in reply to lupus-support1

My usual consultant is Dr al saffar at Bridlington hospital. He understands lupus...The guy I saw yesterday wasn't interested in lupus...just rheumatoid arthritis. ...which I know I haven't got...surely if Dr al saffar and my GP...who has now retired. ..but that's another rant....Both agree it's lupus and they want to treat me as a lupus patient...shouldn't he follow suit?????.... ringing Dr al saffar secretary to get another appointment with him only. .

thankyou for the support x

lupus-support1 profile image
lupus-support1Administrator

I think you are right to insist you see Dr Al Saffar.

My other suggestion is to ask your GP for a referral to see Dr David D'Cruz who is the Director of the Lupus Clinic at St Thomas' Hospital, London - a centre of excellence for lupus. There is an option for you to stay over night on the NHS at The Simon hotel which can be arranged when you get your appointment.

Remember: not all rheumatologists are expert in lupus and some have never seen or treated patients with lupus.

Be well!

Ros

pjsmith0700 profile image
pjsmith0700 in reply to lupus-support1

Thankyou Ros for the information...I will certainly ask if I can get refered to him. ...great advice x

You may also like...

I'm new to this, wondering if this is flare

figure out we can't count on my salary soon and go back to a better job I hope. I'm frustrated...

How can these horrific pains be invisible

like I put my pills up because I have a baby. I lost them 5 min layer I had no memory of where I hid

New and Unsure about me

rheumatologist to see what he says about my latest blood work. I had a positive ANA but the double...

Could this be my lupus or something else

could indicate liver problems. I can't get in to see my GP until later in the week.

Maybe and maybe not Lupus

actually help and just more and more blood tests. Any one else have crazy blood work like this that...