My Mum has just been diagnosed with L... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation
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My Mum has just been diagnosed with Lung Cancer thats spread to her Liver.

Deano
Deano

Hi there.

My Mum has just been diagnosed with Lung Cancer and our world is in a tail spin.

It appears that it has spread to her Liver but we are awaiting confirmation from the hospital which will come on Friday this week.

As yet she has refused to accept that she has Cancer but we are all trying to remain positive.

The doctor has told us that Chemo will probably be there next course of action and im wondering what the hell to expect.

Any advice from you guys would be really great at this time as i just dont know what im going to do once she is told everything on Friday.

I have just requested a copy of the Roy Castle DVD so that may help me understand whats going to happen next.

Thanks for reading this.

13 Replies
oldestnewest

Hi Deano, so sorry to hear about your Mum. I know this period of waiting to find out what will happen next is so hard, for both your Mum & her family. I hope the DVD helps but in the meantime if you click on the following link you will find a really useful guide to take to the next appointment, which explains what questions you should ask roycastle.org/Resources/Roy... Hope this helps & good luck with everything. Emma

Sorry you have had to hear your mum is I'll,my husband has lung cancer,our world was turned upside down,the waiting between appointments at the time seemed to be the worse but looking back it wasn't so bad,we are now 10 weeks from diagnosis and my husband is about to enter second cycle of chemo,I was dreading him becoming unwell from chemo but have been amazed at how well he is,a slight sore throat and constipation is all he has had so far,after one cycle of treatment (2weeks with a week break ) he had an x ray on Monday and it has shrunk just over a cm,there is always light at the end of the tunnel even though it won't seem like it at first.as soon as the cancer is accepted it is easier to deal with.i am positive my husband will fight it and I am sure with your support your mum will get through it.

Hidden
Hidden

Hi Deano,

Sorry to hear this news, the waiting is the worst. I also have lung cancer stage 4 (never smoked) was diagnosed 16 months ago (I was 49). Whatever you do don't read too much on the internet about stats etc, they are based on old treatment regimens and are out dated. I personnaly didn't want them to tell me 'how long they thought I had' I am a nurse so know what stage 4 means in term of time scales and I didn't want it to apply to me. I have remianed positive and active and am doing very well. I tested positive for the EGFR gene mutaion so my chemo is a tablet I take every day, it has less side effects in fact after 6 months there were no more real side effects (apart from I now have very wavy hair!). Your mum should also be tested for the gene mutation as everyone in the uk is now as standard. Only 10% of people have it though.

1959, is right, once exepted it is easier to deal with. I am however making the most of everyday (we're currently travelling around the USA!) and having a whale of a time.

Let me know how you get on on Friday and any thing else I can do to help just ask.

Lyn x

Deano
Deano
in reply to Hidden

Thanks Lyn, great to read you are making the most of it as you say.

My mum is saying that she doesnt want to hear what the doctor says on Friday and wants the rest of us to speak to him.

I dont see how she can be positive and fight it if she doesnt know fully whats wrong.

Also in not sure if she can move to chemo if she hasnt signed consent forms etc.

Thanks for your support folks, its great to just read some more positive messages for a change.

I am due to go on holiday to Florida in 8 weeks with my 6 year old and im already thinking thats not a good idea.

My mum isnt the most positive person and i am worried about how much fight she will have, especially if im not there for 2 weeks.

I just hope the chemo gives her some positive news that will spur her on.

Any idea how long it may be before her chemo may start?

As i said, i suspect Friday will be the official D-Day and im wondering whats next.

Thanks again.

Hidden
Hidden

Hi Deano,

I would think the chemo will start within a week, they don't leave it long to start it. Your mum will have to sign the concent form. She will have to know she has cancer but doesn't need to know time scales etc (like I said in my above post, they are out of date anyway). They will also let you know on Friday what kind of chemo, it may be that she is positive for the gene mutation and therefore the chemo will be in tablet form with very minimal side effects. try not to think of too many 'what if's' you just have to take each thing as it comes. You'll find your mum is stronger than you think. In my experinece through this journey it seems that the family are sometimes more frightened than the patient, maybe its because its out of youyr control and you can't make it go away. For some reason, I find myself with an inner calm, I don't worry or fret about silly little things anymore, its quite strange really.

Have you got anyone else who can watch out for her whilst you are on holiday? I sure she wouldn't want you to miss it.

Will be keeping everything crossed for you all on Friday, please let me know how you get on and remember to just ask if you have any questions about anything.

Lyn x

Hidden
Hidden

Hello Deano,

I hope the news you received today was hopeful. Like your mum, I too have recently been diagnosed with cancer and have struggled to except my diagnosis. I personally found that once my chemopheraphy started I began to feel more positive and gained some inner strength. I have found the support of others from this site very helpful and positive. Keep strong and my thoughts are with you all x

Hi everybody

Thanks for all your messages, its great to see how other people are feeling and coping with this disease.

Mum has been told its small cell lung cancer that has spread to small spots on her liver. The hospital took a biopsy from her lung but not her liver so i dont know if they can be sure of the liver spread as yet.

My mum is with the oncologist today so im expecting a rough ride. She isnt really talking about it to family or friends and wont mention the word cancer yet. She may start he chemo on Thursday so thats a quick start.

We will know more today, as long as my mum sits and listens to the oncologist. She has left the room in the past visits and we have picked up the detail from the consultants. However, they have said that if she leaves the room this time there is a chance she wont be treated as she needs to listen and understand whats happening.

As harsh as that sounds, i agree as i want her to fight this and i dont think she can if she doesnt know all the details.

Any advice for todays visit my friends.

Hi all

Well my mum has had her first chemo session and is now home. She was in the hospital for 3 hours and she was bored more than anything else.

She hd Carboplatin via I.V and is also having 3 days worth of Etoposide and as yet doesnt feel any improvement. She is still in quite a bit of pain in her rib on the right side and strangly, a shooting pain in her bum cheek!

She is taking morphine sulphate at home but it doesnt seem to be having much effect.

When can she typicaly expect to start to feel a bit better?

Thanks

Hi everybody

Just thought i would update you on my mum.

She has now gone through 2 cycles of chemo with the 3rd due next week.

As expected, she is very tired indeed. This seems more so around day 3 after chemo and continues for a while. It does seem to come in waves as she can have days when she is alert and very mobile, however she can also have days where she sleeps a lot and doesnt move around much.

Also, it appears that over the last couple of days the morphine isnt having the same affect as usual. She has been in a bit of pain where usually the morphine is keeping it at bay.

She is due to visit the oncologist on Monday so we will ask a few questions around the pain management side of things.

Hope all of you are going through some positive times and i will update the blog after mums next chemo session.

Deano

Hi diano sorry to hear about your mum. My mum has stage 4 lung cancer and it has spread only got the news a few week ago. Started chemo this week everything is fine with my mum you've got to stay positive for your mum and yourself. It is a worrying time for you all but stay strong there is a lot of help available and all the people we have met are lovely. Take care x

Hi Deano,

My mum was diagnosed with small cell lung cancer in march of this year....

It was heartbreaking and for weeks I cried, got angry, cried and got angry!! Once it had time to sink in although still devastating I could start to deal with it and try and focus on mum having her chemo and radiotherapy and getting better.

I won't lie and say the treatment is easy, my poor mum has been really poorly, in and out of hospital for various complications. But yesterday was her last day of all treatment. No more chemo no more radiotherapy.

She is being scanned in a couple of weeks and we pray for good news. Our lives have been a rollercoaster since first diagnosis but as a family we have got through it.

I'm sorry to hear of your mums diagnosis and wish her all the best. The best advice I can give you which I'm sure you already do is, be there to support her and love her. She will need it.

Sorry I couldn't be more help....all the best

Hidden
Hidden
in reply to Saddolly

Hi Deano my mum was diagnosed with SCLC on 11th Oct had her first cycle of chemo carboplatin and eptoposide on 21st oct none since due to sickness diarrhoea then chest infection then weakness has been in hospital twice now first time 2 weeks out gor a week now 4 weeks and now in a specialised hospice on hospital grounds who have advisedher platelets are pretty low snd her potassium is low before her sodium has been low but that seems to be ok now please help if anyone has or is going through the same i need some hope! Im falling apart and my poor mum is so weak and lost weight thank you in advance.

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