Thoughts on bilobectomy

[Stayp0sitive]

Hi, I'm new to this and wondering if anyone has had anything similar. I was diagnosed with t2b n1 m0 adenocarcinoma lung cancer, the affected lymph node looks like its attached to somewhere it shouldn't be. The surgeon has said because of this if I opted for surgery the location of the lymph node would mean a bilobectomy, he's not sure f he'd be able to do it until he got in and had a look. I have emphysema, it's a massive decision to make and I guess I'm looking for people's views. Thank you for taking the time to read this.

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Dear StaypOsitive

Welcome to the forum, and sorry to hear you have lung cancer.

It is best to be guided by the clinical expertise of the surgeon, it may be that as you have emphysema, he may remove one lobe and the affected lymph nodes. Surgery is often followed up with chemotherapy, or for some people Immunotherapy now or targeted therapies.

This is the link to our lung surgery booklet which you may find useful, it also provides timelines to recovery: roycastle.org/app/uploads/2...

Some people have had the whole lung removed, so removing both lobes is manageable, however they will take into consideration your general current health with your emphysema.

All our information booklets can be accessed from this link: roycastle.org/help-and-supp...

Having cancer can feel quite isolating and it may be helpful to be in contact with others who have lung cancer.

We have a range of support services, from one to one support to online support groups through zoom , if you are interested in any of these you can register through this link: roycastle.org/help-and-supp...

We offer a one off grant of up to £150 for anyone with primary lung cancer and you can apply for this through this link: roycastle.org/patient-grant...

To qualify for the patient grant, the lung cancer has to be a primary and it is means tested.

Hope you hear from others in the forum who have been through the same.

If there is anything else you would like to discuss you can email ask the nurse at [e-mail] or call our free phone nurse led helpline number on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600

Kind regards

The Roy Castle Support Team

[Stayp0sitive in reply to RoyCastleHelpline]

Thankyou, I will have a look through the information 😊

[Eglingham]

Hi, welcome to the forum ☺ I myself was diagnosed with stage 2 adenocarcinoma in January of 2020 in the March I had a bilobectomy, I to was scared but to be honest the process was so quick and I had a good recovery. The surgeon said the same to me because of where my tuma was and it's size, he was unsure if he could do it till he got in there. You go through a few tests to determine if you are fit for surgery. The process is fast and everyone is very helpful. Surgery is a good way as this can be curative. Ask lots of questions and keep yourself active as this helps. Good luck 🤞

[Stayp0sitive in reply to Eglingham]

Thankyou for your reply and I hope you are doing well, I was deemed fit enough for surgery but lung nurse said today that due to my copd surgery is now not looking like a viable option as surgeon thinks full lung removal would be the only way and I won't cope with only 1 lung, will get all info on Thurs next week and hopefully a treatment plan of sorts 😊

[Eglingham in reply to Stayp0sitive]

There is so many new and good treatments. People kept saying to me positive thoughts is a big part and they were right. Stay positive and don't Google as it's very much out dated stuff, this forum is a good way to seek some help. Good 🍀

[Stayp0sitive in reply to Eglingham]

Thankyou, I try not to Google but its hard 😊 just need to try and stay positive, good luck to you too ❤️

[Monty11]

my husband diagnosed the same. He has severe Copd. He decided he didn’t want an operation and subsequently failed the walking/breathing tests anyway, He has opted for Stereotactic Ablative Body Radiotherapy instead (SABR), he will start it later this month. Fingers crossed for a good outcome

[Stayp0sitive in reply to Monty11]

Thankyou for your reply, I hope your husband has a good outcome 😊 I'ts looking like treatment for me as well as surgery not looking like an option now, wishing your husband good luck on his journey 😊

[Monty11 in reply to Stayp0sitive]

good luck to you too

[Stayp0sitive in reply to Monty11]

Thankyou ❤️