I was diagnosed with terminal squamous cell lung cancer last October. My upper left lung had collapsed with a 10cm tumour and the tumour was blocking the lower lobe and caused it to overinflate. I had two sessions of palliative radiotherapy, one week apart, in Nov 21 to help keep the lower lobe functional which did improve my breathing a little. I received no further treatment or consultations after Dec 21.
I have improved a lot in the last 3 months. My natural voice has returned, my breathing has improved, my taste buds are getting back to normal and my appetite has improved. When contacted by my regular cancer nurse, she suggested an appointment with my respiratory consultant on 1st June, who arranged a new xray the same day. The xray confirmed that my lung has reinflated without medical intervention which is an obvious relief and is the reason my voice improved too. So far, there has been no report to my GP of the xray findings, and no further assessments or monitoring offered.
Once cancer has been diagnosed as terminal and no treatment recommended, does this mean I will not receive any ongoing monitoring, even if things appear to be improving? I don't want to get my hopes up but I don't want to ignore the possibility of extending my life either. Other terminal patients seem to receive regular monitoring, so what is the criteria?
I don't feel confident enough to question consultants but I feel I have already been written off. I am not claiming I have been written off, just that I feel that way, maybe due to the pressures on the NHS they are being more selective?
Sorry for the long post, but any tips how to question medical professionals without offending them or appearing to question their competence would be very welcome as I am not naturally tactful and am generally a loner. If anyone has had similar experiences I would be very interested to hear them.