I was expecting to see the oncologist on Tuesday with the results of the further test on cells for mutations but the results haven't come back yet - so more waiting. Hopefully the results will be available in the next week or two. I know that having a new mutation is a long shot (there weren't any 20 months ago when I was first diagnosed but apparently new mutations have been identified and that's why they are testing my cells again). If there are no mutations to target then I will need to consider a more aggressive form of chemotherapy as the chemo and immunotherapy I had been receiving has stopped working.
Unfortunately the pain in my right shoulder blade has worsened and I was advised by one of the lung nurses to try paracetamol 4 times a day and intersperse with ibuprofen 3 times. Unfortunately this has not been sufficient - although just about manageable during the day, night time and during the night has become difficult to manage so my GP has prescribed me oramorph for the night time, 5mls, which is much better. I don't know how long I'll be able to manage the pain with over the counter pain relief in the daytime though.
On a more positive note - I have celebrated another birthday - my second since diagnosis so that is great and we've just had a lovely weeks' holiday in Cornwall with walks, meals out and pub nights. Great to feel "normal" for a change!!
Take care all. Mags x