My latest very sad news: I posted on... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

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My latest very sad news

yellowtulip55 profile image
22 Replies

I posted on here quite some time ago. My beloved husband had been on immunotherapy (Keytruda) for lung cancer. He was doing so well - until he developed meningitis and was taken off the programme. He was out on steroids. He was observed and had MRI scans. Six months later he went on to chemotherapy. It was not successful and knocked him back. Two years down the road with cancer he began to suffer extreme pain in his spine. The cancer had spread to the spine and to his brain. He was discharged from care at the hospital and began palliative care at home. I was shocked and distressed at how rapidly he deteriorated and distraught at how much pain he was in. He lost the battle on the 14th December and died in my arms in our home. You are see what the prognosis is but you are never prepared. I am numb. My heart goes out to others in here going through the battle.

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22 Replies
Swimdown profile image
Swimdown

So sorry to hear the sad news. Sending love x

yellowtulip55 profile image
yellowtulip55 in reply to Swimdown

Thank you so much for your kind message. Xx

yellowtulip55 profile image
yellowtulip55 in reply to Swimdown

Thank you swimdown. It’s very kind of you. It’s been a long battle for my beloved husband but I miss him so much.

Lyubov profile image
Lyubov

My heart goes out to you for your devastating loss of your beloved husband. Sending warm thoughts & prayers for comfort, strength and peace. Blessings to you.

yellowtulip55 profile image
yellowtulip55 in reply to Lyubov

Thank you so much. I am still numb. Thank you for your kindness.

Fifi24 profile image
Fifi24

I am so sorry to here of your huge and painful loss, know you both tried and know you could not do more then you already did, never live with should have, could have and would have, as they are all the past.What you did, is be by his side at his very time of need, keep strong and treasure your moments, this is what will keep you going and keep you smiling, the love between you, will always be, know he passed on, a happy husband as he had a loving wife. Sending lots of hugs and strength your way.xx

sassassas profile image
sassassas

Dear Yellow TulipSending you love. It sounds like you and your husband had a lovely relationship and you will undoubtedly have played a huge part in making his life special. I hope you can take one day at a time, whilst you move through this very difficult period.

Love, Sarah x

simlut profile image
simlut

So very sorry. This disease steals so much from you and creates an anxiety that never goes away.Your lovely husband is free from the fear, anxiety, pain and suffering this disease causes.

Sending you lots of love and big hugs xxx

Elt79 profile image
Elt79

So sorry to hear this - as you say nothing ever prepares us for this. Love and hugs x

Red58 profile image
Red58

Thinking of you at this time x

So sorry to hear this news.Sending love xx

KT22 profile image
KT22

So sorry to hear the sad news. I know exactly how you must be feeling as I lost my wonder husband 18 months ago from secondary lung cancer which went to his brain. He also went downhill rapidly & scarily after chemo. He died in my arms too. I can’t really offer any advice as I’m still struggling to cope. All I can say is be kind to yourself & do things at your own pace. Sending love & a big hug xxx

yellowtulip55 profile image
yellowtulip55 in reply to KT22

I am so very sorry for your loss . I know exactly what you have been through and what you are still going through. My thoughts are with you. xx

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

So very sorry to hear of your great loss, and although difficult at the time, it sounds like both of you would have wanted to be in each others arms, may your husband be at peace now with no more suffering.

it is so difficult for the person that is left to grieve and cope with the loss. Hope you have plenty support around you and please do not hesitate to contact us if you wish to chat or discuss anything: our email is lungcancerhelp@roycastle.org and our free phone nurse led helpline number is 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600.

The Loss Foundation is a charity that offers bereavement support for anyone that has lost a loved one to Cancer or Covid: thelossfoundation.org/ and their helpline number is

0300 200 4112

Our deepest condolences

The Roy Castle Support Team

I'm so sorry to reads this and for your loss, no words can make you feel better, but hopefully in time your memories will xx

Babydolltina profile image
Babydolltina

Good morning Yellowtulip. My heart goes out to you, because I have been down that road back on 18th December 2019. We were told that Cancer is Palliative some times but they try using chemotherapy and radiotherapy and in my opinion they prolong the suffering. You will find it hard at times and have days of dispare,but that's ok. Just remember to take time for yourself and remember that your husband will be with you in your heart forever.

God Bless

John

yellowtulip55 profile image
yellowtulip55 in reply to Babydolltina

Thank you so much John and to everybody else who was so kind in replying to my news. I am numb at this time and so very lonely without my beloved husband of forty two years. I know so many of you have been down this grief stricken road before me but I know too that there are many positive stories also thankfully. I just have to keep taking the smallest steps forward at this moment. I wanted to say thank you to everyone for their kindness and thoughts at this time. I am very grateful. x

I am so very sorry, thinking of you and your family. Xxxx

Manninmaid profile image
Manninmaid

So very sorry to learn of the huge loss of your beloved husband. It sounds like you were a wonderful support and comfort to him. Hope that knowledge, your precious memories of your life together and knowing so many people are thinking about you at this very sad time bring you comfort and peace in the days ahead. Sending love and hugs 💕xx

Calmrain profile image
Calmrain

I am so sorry to hear about your husbands passing. It is shocking to see our loved ones in so much pain and not be able to do anything about it except be there for him. I am sure he was comforted by your very nearness towards the end. Now he is at peace and hurts no more. Sending you warm hugs. Janet xx

Chester1967 profile image
Chester1967

So very sorry to hear this, sending you big hugs and strength to get through this 😘

JanetteR57 profile image
JanetteR57

So sad to read this update - words are never adequate at such difficult times but hope you can find some comfort in having supported him throughout his times of need... thinking of you....

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