Well week 3 is almost finished and tomorrow I start Cycle 2. This week I am going to touch on a subject that some of us shy away from and hope I don't upset anyone. Well week 3 started with a few nose bleeds and my psoriatic arthritis came back with vengeance. This is something I hope to discuss with my rheumatologist at the end of this month to ask if it was the steroids or treatment that gave me so much relief from pain. Still feeling extremely tired.
I also had a telephone call from the wellness nurse a Macmillan nurse attached to the cancer unit at RBH. I had one of these when I started Immunotherapy in 2018. I discussed a lot of things going on in my head. how I feel different this time round with the therapy this being the 3rd therapy in 3 years. Now I know that we all tell everyone on here to stay positive and that is a good thing. Sadly I seem to have lost it at the moment and I'm sure some of you on here can relate to this. I have questioned my life reasons for everything and had some very dark tearful days. I have started to loose my lovely red hair which I knew would happen but I won't loose it all this is so sad.
However after speaking to the wellness nurse I will be embarking on some useful counselling in the next week which is all happening quickly. I think this will be very useful because as much as we love our family and they support us 100% we cannot always talk to them. What I am trying to say that it is okay to feel sad angry and all the other feelings that come with having this horrible disease. If you can get help from your cancer team, the nurse on this very helpful site or even from the other cancer people on this site go ahead and ask for it. I was brought up to sort out my own problems stay stoic but sometimes we all need help so PLEASE don't be afraid to ask/talk about how you feel if not with your family then someone else.
So tomorrow Cycle 3 we shall see what awaits us. Hope this has been helpful to you all.