Adjuvant Tagrisso for stage 3A lung c... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

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Adjuvant Tagrisso for stage 3A lung cancer

Beepers7
Beepers7

My EGFR adenocarcinoma exon 19 lung cancer is currently in remission after chemo radiation/ wedge resection and adjuvant chemo. Last treatment in June 2020.

I have been following Tagrisso for adjuvant treatment. It has now been approved for that purpose in the USA. Does have side effects and right now I’m feeling quite good.

Working with my oncologist but wanted input from healthunlocked Friends.

8 Replies
oldestnewest

Just wondered if you are a member of one of the EGFR Facebook groups. There is one in the U.K. and I think in the US might be worth asking there too?

Beepers7
Beepers7 in reply to Bow-19

I don’t participate in Facebook but my wife does. I will have her check that out.Thank you for you concern and response.

Bow-19
Bow-19 in reply to Beepers7

I was the same as you and only joined Facebook to join a Lung Cancer Group. Also check out egfrpositive.org.uk

Beepers7
Beepers7 in reply to Bow-19

Thank you so much. I will check it out.

Bow-19
Bow-19 in reply to Beepers7

The US Facebook one is EGFR resisters Lung Cancer Patient Group

RoyCastleHelpline
RoyCastleHelplineAdministrator

Dear Beepers7It is good to hear that you are feeling well and in remission. This has not been approved for adjuvant treatment in the UK and have detailed its licensed use below.

Tagrisso (Osimertinib) is approved for use for advanced EGFR T790M non-small cell lung cancer, if there has been disease progression after 1st line treatment. This is accessed through the patient access scheme (where the drug company will lower the cost for the individual to access this through the NHS, and the drug is in the cancer drug fund from NICE)

nice.org.uk/guidance/TA653/...

In Scotland this is not approved for use in 1st line treatment but has restricted access for those who have had previous treatment:

scottishmedicines.org.uk/me...

If there is anything you would like to discuss you can either email us at lungcancerhelp@roycastle.org or call our free phone nurse led helpline number on 0800 358 7200

Kind regards

The Roy Castle Support Team

Thank you for your reply and offer to call or email. I meet with my oncologist January 22. I will post the outcome.Thank you all for your work in Lung cancer.

RoyCastleHelpline
RoyCastleHelplineAdministrator

Dear Beepers7As Bow-19 has mentioned this is the link to the Facebook page for online support for those with EGFR: facebook.com/groups/EGFRRes...

Kind regards

The Roy Castle Support Team

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