My Mum part 3: Hello My Mum had her... - The Roy Castle Lu...

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My Mum part 3

Leccilats profile image
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Hello

My Mum had her first treatment last Tuesday. She’s stage 3b with NSCLC adenocarcinoma and is having chemo and immunotherapy at the same time. She hasn’t had any side effects up until yesterday when she said really bad fatigue but her. I just wanted to ask if this is normal? She was feeling really positive after the treatment because she felt fine so I think she was hoping that would continue. If anyone can give me some advice on fatigue and whether it is a common side effect I’d really appreciate it.

Thank you

Sarah x

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Leccilats
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RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Dear Leccilats

Sorry to hear your Mum has fatigue. Side effects usually start within the first 2 weeks of treatment and most can be managed well, however we do advise that for any change in symptoms do let the lung cancer nurse specialist know or the oncologist as early as possible so any treatment can be implemented.

For some the side effects can settle down or remain very mild.

Chemotherapy alone can certainly make you feel very tired but also for some that are on combination therapy.

If it helps, you can either post on the forum or email us at lungcancerhelp@roycastle.org the combination therapy your Mum is on and we can provide information on the side effects specifically to these drugs.

This link from Cancer Research UK provides information on fatigue and how to manage this: cancerresearchuk.org/about-...

If there is anything you wish to discuss further you can either email us at lungcancerhelp@roycastle.org or call our freephone nurse led helpline number on 0800 358 7200

All the very best

The Roy Castle Support Team

Gwennewcomer profile image
Gwennewcomer

I’m no doctor and everyone is different. I am on my second round of a chemo named Alimpta this time. I woke up yesterday with zero energy which I know is normal because I have experienced this before when I was on Keytruda, Alimpta and Carboplatin.

The first few days I don’t feel it because they have me on steroids but when the steroids ware off I’m drained and my legs feel heavy when I walk. I also start getting neasea and take pills for that.

Hang in there and I hope her energy comes back soon.

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