my N.I.C.E Reply following my FOI request into perscribing criteria of Alzheimer’s Dementia Patients Suffering From Asbestos Mesothelioma.
Given my FOI request research into this mater I am not surprised there is no information available.
But if information was in public domain I would not be making this thought provoking request.
In your reply you say NICE have no guidelines or perscribing criteria into those suffering from Alzheimer’s Dementia Asbestos Mesothelioma.
So I don’t really understand how it can be excluded UNLES you mean from society.
Inept one thinks.
600.000 people in uk are diagnosed with Alzheimer’s Dementia quite a chunk of sociarty 34.000 excluding Alzheimer’s Dementia die from asbestos related cancer.
According to a 2018 Peer Review National And Lung Cancer Audit : Lung Cancer Asbestos Mesothelioma.
The symptoms of lung cancer and mesothelioma are relatively non-specific, as a result of which referral routes are many and varied.
Of those diagnosed with lung cancer or mesothelioma, no more than half are referred directly from primary care to the lung cancer specialist team with suspicion of the disease.
Rapid referral guidelines are available and specialist rapid access clinics have been set up in virtually all trusts in England and Wales to diagnose and treat patients.
Management of patients with lung cancer and mesothelioma is now almost entirely carried out by specialist multi-disciplinary teams (MDTs) with lung cancer and mesothelioma being managed by the same specialist clinical groups.
Establishing a tissue diagnosis for both lung cancer and mesothelioma can be difficult and often requires invasive investigation. Thus there will always be a proportion of patients in whom the diagnosis is established on clinical and/or radiological grounds only.
Furthermore, there are a small proportion of patients who are either not recognised or who are too sick and are therefore never referred to secondary care. Because of the specialist nature of surgery and chemo-radiotherapy, a high proportion of these patients are managed by more than one trust.
This poses problems with completeness of data unless all clinical teams involved in the care pathway are collecting the appropriate data.
I would say those with Dementia Alzheimer’s suffering from asbestos lung cancers are tottaly missing forgot about as peer review surgests.
Clearly as NICE is in business of National Health Care Excellence (NICE)
Excluding those proportion of patients who are not recognised I would of thought would of been on top of any list.
As from my understanding those Alzheimer’s Dementia patients excluded and not recognised like peer review suggest’s would not form any part of health care excellence and could constitute a fundamental breach of there human rights.
whatdotheyknow.com/request/...
UN Human Rights EUR
@OHCHR_Europe
