Hi everyone, My chest specialist recently told me that the next best course of treatment for me would be a lung transplant. Although it has s...
3 day program for Lung transplant list
Hello everyone, Tomorrow I continue my journey at Wythenshawe hospital at Manchester in the UK. I arrive there Monday and I will be released ...
I have Severe Emphysema and I am not well at all, I want to go for it if they say Yes, but its big decision....
Hi, I'm new here, Just to say hello and looking forward to reading all the helpful advise which I have been looking for. I am Copd, On the Tr...
I'm new my names David I have IPF need double lung transplant....
Lung transplant assessment waiting times
I have IPF and was referred for a lung transplant assessment in July by my consultant but have not been contacted by the transplant assessmen...
Matt says hi
He's now concerned that the RA might affect the requirements for lung transplant but still waiting to see....
PIP payments after a double lung transplant
I wonder if anyone from the UK could answer this questions. If you are receiving PIP payment do you have to inform them before your operation...
Isolated, Oxygen User
Hi Guys, My name is Jyoti i'm 28 with pulmonary fiborsis, which is now terminal and i require ambulatory oxygen ( oxygen user 2015. After my ...
Disappointing hospital visit
Hello again everyone i hope you are all keeping as well as possible. It's been a while since my last post ( so may be long winded ) well 15 w...
Need a breath of fresh air...
My name is Victoria, 49 yrs old from Long Island, NY. I am in the end stage of COPD/Emphysema and looking to apply for a lung transplant....
Hi, my name is Adelaide and was diagnosed April 2016 with Pulmonary Fibrosis. My Dr. Sent for a lung transplant evaluation but I was not a su...
Applying for ESA advice
Hi, I'm in need of some advice please. I currently work and have done so with the same employer for the past 26 years....
My family doctor and my cardio therapist have asked why I am not on a transplant list. I have to never thought about that and my doctors have...
Breathing get worse
Hello Friends... I have had COPD and Sarcoidosis for about 15 years and I have seen the decline in my health....
I start my classes again Monday and Friday every week for 6 weeks, I have managed to co-ordinate them with my Breathe Easy Exercise Class and...
Lung transplant having a celebratory drink.
Good morning everyone, I am currently trying to get on the lung transplant list in the UK. I occasionally at party’s and Birthday celebration...
Still on the list
Hi, don't post often but am always here, been on the list for double lung transplant for 11 months now. During that time I have deteriorated,...
I thought I had got on top of this issue but.... about 7 weeks ago it returned!!!...
Hi everyone merry Christmas! I'm one year post op single lung transplant, I'm currently going thru a chest infection for which I'm on extreme...
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