“Disease Flare” in lung cancer
And what I have found, and what might explain what happened to my dad, is called a “ disease flare. ” I thought I was prepared and knew a lot...
Another surprising visit
Had my pfts done he said I lost a little of my volume capacity, thought it was because of my cough. He heard wheezing and crackling....
1sr Appointment with Oncologist
He thinks Immunotherapy is the best option for me ( due to the pneumonia I had in October and complications from an illness I had several yea...
C T Scan
Having over the last few weeks had a cough develop....
Adding radiation to chemo or not?
He has a very small portion of his right 4th rib showing cancer on PET scan but it’s minor and small tumor in each adrenal. There’s also the ...
Paraneoplastic syndrome with NSCLC???
This came on rapidly, with most symptoms within the last week of loss of muscle coordination and balance, low urinalysis output, severe low b...
I’m disappointed at not having targeted therapy!
I’d almost pinned the hope on these newer drugs and so being told I didn’t have the right mutation was a bit of a blow. I’m just focusing on ...
Love of my life
It is just coming upto 1year since I lost my husband after almost 53 amazing years of marriage . In 2014 I he went to seek medical advice abo...
Hi everyone, I joined in May this year,then I haven't been on in a while,just started my second time of lung rehab,it really helps, I knew I ...
Missed diagnosis for lung cancer.
My hospital had my tumour on an Xray for over 2 year's but omitted to tell anybody despite the fact that I was in and out of hospital, losing...
Bronchoscopy with BAL
Hi there, I'm currently under the Royal Brompton Hospital for undiagnosed breathlessness and complex cough. I've had CT scans, CPET testing, ...
Severe cough after chemo
His cough was at first an inconvenience and it has now turned into him not being able to sleep or talk. Doctors have ruled out pneumonia, con...
A Milestone that Shouldn't Be!
Today is my 60th birthday. I have been thinking about all it has taken to get through to this day....
Great confusion, great disconnect between the various doctors and treatment centres
When discomfort returned she goes in to radiation therapy. Chest infection....
Being on gifitinib drug
Being on gifitinib On a our annual 4 weekly blood tests for to see if my wife is ok to continue the drug I had said that her cough had got wo...
Post lower right lobectomy I have LPR
I have been taking PPI med and Gaviscon Advance for about 7 weeks but still have bouts of hoarse voice, breathlessness, noisy breathing, occa...
Alpha 1 antitrypsin question please
My GP recently requested a blood test for alpha-1 antitrypsin due to some wheezing I have, and a strong family history of COPD. The blood tes...
Trying to be hopeful
Does anyone have any experience of taking this drug? My consultant says the side effects are not as severe as chemo and won’t make me feel si...
Silent Reflux after lung surgery?
Almost 9 weeks after my lobectomy I have noisy breathing in my oesophagus, a chronic cough, hoarseness in varying degrees, and post nasal dri...
Recurrence of lung cancer after 3.5 years
At present, I don’t think the trauma of treatment is worth surviving another few years for ( Or not! Because of my physical condition the onc...
Partner with us
Start a Community