Keytruda

[kookieannie]

Anyone on Keytruda for lung cancer

[Lovey1000]

Very true I’ll be on it soon as they radiate my cyst that HAD liaison small but gone and I’ll radiate the area and get kdytruda Aldo some marker weee checking for

[Teen225]

Hi

I am due my 22nd treatment next week and have had great success with it. Are you having immunotherapy yourself?

[Lovey1000 in reply to Teen225]

I barely had a little cancer in a cyst removed back of brain now I do radiation since it’s removed via surgery then I go to kaytruda and I had libectomy right side Dec 2017 stage 3a but now leaked in back of brain and surgeon said he saved my life by removing it and doing 4 radiation on that spot only and I wake up every day “ I’m going to die” I gotta to go get a life all I think is I’m going to die like any day this is so scary why can’t I say oh they got it I’m lucky I get to live???

[Lovey1000 in reply to Lovey1000]

Ahhhhh need positive outlook or experience u guys got passed this

[parkmoy]

Just had my second treatment. No idea yet if it’s working.

[lakesregion]

On it the last year. Seems to be working. Going on 8 years fighting this beast. Much more toler vs. chemo, hope it keeps working. Stage lV lung cancer NSCLC

[Lovey1000 in reply to lakesregion]

Wow now I’m hats fab!!! Im celebrating ice cream sandwich I got my hope 8 years love it 😍

[Ahruaware]

Following. My64 year old husband was stage 3 A nsclc squamous this spring. Had upper right lobectomy in April and one malignant nearby lymph node removed (others were benign) and recovered well. He had just finished his second chemo treatment in June - got very ill quickly - that same night & went down from there. Two days later after a catscan, it was discovered he had two perforations in his small intestine. He was fully septic. Lab work confirmed the lung cancer had metastasized to his small intestine with malignant nearby lymph nodes. Chemo worked on tumors but left the perforations. After 10 weeks in the hospital recovering from sepsis (ARDS, kidney failure but now recovered, pneumonia, 2 trachs) , we're back home and he's fully recovered - he's lost a lot of weight & is weak but strengthening on a daily basis and ready to do cancer battle again. He is definitely a candidate for Keytruda but really leary about more chemo. He has to have another petscan. Any suggestions are greatly appreciated. The doctors are absolutely amazed at his resilience and determination. We want to go to MD Anderson now since he's now stage 4 and medically more fragile. His oncologist blamed his episode of extreme sickness 3 hours after completing his second chemo on food poisoning which was completely wrong.

[Lovey1000 in reply to Ahruaware]

I feel strong for me

[penelopejillmoran]

My husband was given 6 months to 1 year to live three years ago. He had his first Keytruda (Pembrolizumab) treatment two years ago but has only had 17 infusions so far. His tumour and nodes shrank and have remained stable for a year, but he has just had another scan and we shall know the results of that on Wednesday. It has been a lifeline for him BUT he developed serious side effects on his legs, feet and in his mouth which was eventually diagnosed as Lichen Planus - a very rare side effect. The thinking for him now is that if he has to go back on Keytruda, they will have to manage the side effects carefully and it may be that, from the beginning, it would have been better to give him a few treatments and then stop when the tumour first shrunk. But immunotherapy is such a new drug, people are learning all the time. It doesn't work for everyone; a friend of his felt worse ON the drug than off and he opted for quality of life over length of life and died last year. We realise that my husband has been one of the lucky ones, but are so grateful for the extra time and quality of life Keytrude has given him thus far. Hope that helps.