I'm Victoria 42 and I've just been diagnosed with lymphoedema in both legs, with likely lipoedema in both thighs. I'm wondering if there's a bigger problem with my lymph system though.
I had huge tonsils until my twenties - always getting tonsillitis. I was diagnosed with ME when I was thirteen - my main problem heavy, achy - painful legs plus exhaustion. My Mum took me to the GP when I was 15 because she was concerned about my legs and that they had become very stocky - that was put down to weight gain. I then had gut problems from when I was 21. Diagnosed as lymphatic colitis at 34 following a diagnosis of Turner Syndrome. Oh and I was offered compression garments for my arms too - they're often heavy and achy.
What's the best way of getting this all investigated please?