Support and Understanding is EVERYTHING

Hi. I'm Thick Legs and I'm new here. I'm grateful for this forum because being a lymphedema survivor is sometimes a lonely place. Family and friends, even doctors don't understand....I tend to deal with my codition alone and with lots unanswered questions. So thank you all for being here. I'm looking forward to learning and sharing

[Lynora]

Hi there - beautiful flowers!

You might want to check out a few support groups on your site of The Pond! If you use the Search option (magnifying glass, top right of this page) and put ‘USA’ or ‘help in US’ as a request, all the posts that have including info for the US based readers should be listed.

[Rebec]

Hi, I know that many doctors don’t quite understand about lymphoedema but, if you find a support group in the States, or if you go to have a special massage, why don’t you take with you a member of your family and/or a friend. This might help them understand the problem you’re facing every day. Good luck!

[CCT67]

There is a good US web support/info group run by the National Lymphedema Network (this is a UK site)

inspire.com/groups/national...

If you’re on Facebook you might enjoy Lymphie Strong Inspiration Group. It’s a closed LE support group, just fill in the basic questions about your LE and you’ll be accepted. There are other Lymphie groups on Facebook but many are open groups ie everything is public for anyone to see. closed groups are safer!

Lots of fantastic Lymphie bloggers- you can find a list here

lymphaticnetwork.org/living...

You might find these useful for family friends and doctors

10thingsle.info/

While LE can be a very isolating disease there are many hubs of support and knowledge available on the web just waiting to be discovered 😊

[Hidden]

Thanks guys!

[CraigDavidson]

Sorry to hear this but I can totally relate to this my biggest struggle isn't the not knowing the answers but feeling along struggling with a condition not many understand