I have had leg ulcer s now for the last 5 months. The problem is that I don't fit into there usual leg ulcer patient
1 I have a latex allergy which has manifest into I get sensitive reactions to most of their products they use. I can only use non sterile pads. So far only zipzoc seems to be working. They put a new one on last Wednesday which was brilliant but by 3am I am ripping it off my leg which now has angry red welts on. Only to be told on Thursday that it wasn't an allergic reaction anymore as it was some hours later and I had removed the dressing and washed my leg even though my leg was still bright red and very sore and it had stopped being an allergic reaction when I had removed the dressings and washed the leg
2. I tried compression bandages but after sitting in lymphatic fluid eating away at my skin for 4 days I couldn't take any more and took it off. I have now refused to consider this again as I am still leaking fluid. My lymphoedema nurse agreed with this
3. My lymphoedema nurse has recommended easy wraps which I have a calf and foot. She put it on and showed me what to do. After 24 hours after starting it I took it off to change my dressings only to find that my ulcers had grown. My lymphoedema nurse told me to remove it. I am still going to have easy wraps but try to increase the amount of compression gradually both time wise and compression wise.
I have tried the Wales Pathway but I had to do it on my own as they didn't agree with it.
I have also found out a lot of information on Internet because I think that they are treating my ulcers as venous ulcer not a lymphatic ulcer.
We went and saw our GP on Thursday and he changed some of my pain medication and gave me a sleeping pills as I also have osteoarthritis and osteoporosis and the outcome is that my husband and I have to go to a meeting with the head practice nurse and the nurse I get on with. I have been told that I either have compression bandages, compression wraps which I am willing to use or they will manage it but it will probably never heal.
I am currently trying bed rest with my bed raised by 7 inches and then I have a shaped pillow which raises it another 2 /3 inches. I am unable to moisturise it as I am reacting to all the different emollients.
Does anyone have any more ideas as I am running out of them. I also have gads and some times the pain I am getting from my ulcers have taken me very close to having had enough and ending it which my GP and one of the nurses know about.