Newbie

[Claire0208]

I’m new here

[Jenny113]

Hi Claire. Welcome. This is a great support group for those of us with Lymphoedema I don’t post much but read loads and so much helpful advice!

Where are you from and what sort of Lymphoedema do you have?

I have primary lymphodeama affecting 3 limbs now. My legs since my 20’s and hand developed in my 50’s. I absolutely hate the conditions but consider myself lucky as generally very well controlled. I refuse to let it affect my quality of life and so far it hasn’t stopped me doing anything but sometimes have to make adjustments or be mindful.

Jenny.

[Claire0208 in reply to Jenny113]

Hey Jenny

I’m from Co Durham and I’ve had lymphoedema since August 2015 which started in my left and now in the past year it’s gone into my right leg to.

Do your feet swell out as both of mine do which means I can only wear sandals.

[GabbiD in reply to Claire0208]

Hi Claire, welcome!! I am in the US. I was just diagnosed in 2017 with lymphedema in my left leg. I wear custom compression socks. I did wrapping for three weeks to get it under control first. I anticipate doing some wrapping this summer because humidity seems to make it worse. Before I got my legs under control my feet would get terribly puffy. I hope you find this group helpful. I sure have.

[Claire0208 in reply to GabbiD]

Hey Gabbi

My legs and feet do the same especially in the summer especially when it very warm and humid as I feel the extra weight on my legs with the heat. Summer used to be my favourite season now it’s my worsed 😔 I have to say winter is my favourite now as it used to my worsed.

I wear compression socks too as it was only on my left I used to wear them but in the past year I have to wear them both of them.

I’m certainly enjoying this group as it’s nice to talk to other people who have the same condition as me as none of my other family members have it so they really don’t know how it affects me but they are always there for me.

Hope to speak to you again soon.

Claire

[Jenny113 in reply to Claire0208]

Hi Claire. My feet have settled at a 3x width fitting and I get my shoes from jdwilliams. They have some great shoes, boots and sandals I can wear. I can also get into some hotter x wide. Jo Brown recently did some shoes through jdwilliams I’m 3x fitting. I was so excited I bought loads of them just because it was the first time in years I could get some lovely shoes!

[Claire0208 in reply to Jenny113]

I will have to take a look and see what I can find as it would be nice to wear something different other than sandals as that’s all I’ve worn since my feet started swelling out.

Thanks Claire

[Lynora]

H Claire - welcome to the group.

[Claire0208 in reply to Lynora]

Thank you

[lovesradio]

Welcome to our lovely supportive group Claire xx

[Claire0208 in reply to lovesradio]

Thank you

[Bev-1966]

Hi claire0208, I'm bev from Sunderland so not so far away. Welcome to the gang.

I have bilateral full leg lymphoedema and have to wear full leg open toed compressions as I only wear flip flops all year round.

All your answers to all your questions will be answered especially from our queen bee (lynora).

[Claire0208 in reply to Bev-1966]

Thank you as it’s nice to talk to people with the same condition as me 😁

[Hidden]

I would say welcome... yet it is like going to the dentist .. I wish I didn't have to be here... lots of great advice info helpers.... on this site.... enjoy

[Claire0208]

Thank you 😁

[Pkstracy]

welcome claire

[Claire0208]

Thank you