Hi all ,i just popped in to say Hello, read some posts and give an update on the changes I've had since i last posted.Well first of all i haven't been in for a while,and would like to wish everybody a very happy new year,a bit late but better late than never.
Well here we are another year,and the lympheodema still with us but for me i has got worse,but still coping with it ,and dealing with it every day moving on.2017 i had my last appointment with the lymph nurse,and am now getting my compression garments from my gp on percription.
This has been a big change for me,because i no longer get measured for compression stockings,i just got to have the same ones every time ,as i don't think the nurses at the clinic or the gp know how,or do measuring of limbs with lympheodema.I dont have dopplar tests anymore ,so don't know if there are any blockages or anything,so thats gone down the pan as well.The nurses at the clinic were fantastic and i was told that from now on there is no more lymph clinic and patients will be referred back to their GP'sthe very people who sent me there in the first place.
Well the lympheodema has got worse,left leg is badly swollen and it has spread to my groin and stomack ,luckily im retired and spend much of my time indoors,which i don't mind as i get good help from my wife who has been fantastic,but i like to do as much as i can myself and not be a burden on anybody,at least thats the way i feel.
I am not complaining,there are people and children who have worse conditions than mine,and it's those i feel sorry for,my heart goes out to them,i have what i got and im dealing with it and move forward,and take every day as it comes,thats the way i look at it,
Well sorry if i bored you all with my short story,just hang in there,life goes on with or without lympheodema,there will be bad days but the good days out number the bad ones.I wish everybody all the very best,take care ,and keep posting,ill be back soon,bye for now.