Restless legs: Hi gang, how many get restless leg... - LSN

LSN

5,702 members2,635 posts

Restless legs

Bev-1966 profile image
10 Replies

Hi gang, how many get restless leg feeling in there legs and feet where you can’t sit still, I have it all the time day and night even with gabapentin soon as it sit or get into bed? 😡😡

Written by
Bev-1966 profile image
Bev-1966
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Lynora profile image
Lynora

I used to get it a lot, then tried magnesium oil, rubbed into my legs last thing at night, and it really helped. I take a supplement containing magnesium. I also used the old fashioned remedy - a bar of soap tucked under the sheet towards the bottom of the bed - it helped too - heaven knows why!!!!!

Magpuss profile image
Magpuss

All of Lynora's suggestions + I have a Reviber 'machine' which also works when I can be bothered to use it.

Kallenubble profile image
Kallenubble

Yes, a lot - especially late at night before going to bed. Usually in the swollen leg, but sometimes the other. Is there a connection to lymphedema??

Bev-1966 profile image
Bev-1966 in reply to Kallenubble

I think so but not 100% sure, I’m sure my LD nurse said you get restless leg sort of feeling with LD.

CCT67 profile image
CCT67

It’s s regular occurance for me most nights in both my legs - I take 700mg good quality magnesium (Terra Nova, Viridian brands) before bed which reduces it. I do loads of abdominal breathing, and SLD to drain my trunk. (Head, neck, arm pits, sternum) when it’s so bad I can’t sleep. It feels like millions of insects crawling inside my skin. It’s a common symptom among those of us with lower extremity Lymphoedema particularly at night, you’re not alone! noticed it occurred much less after I stopped drinking alcohol, and cut out very spicey food, dairy, wheat. Alcohol is a huge culprit for many lymphies with restless legs as it causes vasodilation of the blood vessels ie more swelling in the limb

Bev-1966 profile image
Bev-1966 in reply to CCT67

I haven’t drank for 25 year and don’t eat spicey food, I have bilateral full leg lymphoedema and they are like that soon as I take weight of them.

CCT67 profile image
CCT67

I also have Lymphoedema bilateral leg, as well as trunk and arms. Among many MLD therapists the restless/insects crawling inside legs feeling is thought to be stagnant lymph. The more Simple Lympharic Drainage/SLD and deep abdominal breathing (to stimulate the deeper lymphatics which includes the diaphragm) the better - doing it at least a few times throughout the day to encourage drainage is important to promote drainage and for many lymphies it relieves the pressure in the limbs

Carolpa profile image
Carolpa

Magnesium citrate. Inexpensive and effective

Hippopotamus profile image
Hippopotamus

Hi, this post was from a while ago, but thought I’d add my two cents: I have bilateral primary lymphoedema in my lower legs, but don’t get restless legs. However, my partner has terrible restless legs, and has recently started taking sofril — it’s an anti-tremor medication for Parkinson's but works a treat!

BedfordBoy profile image
BedfordBoy

Hi bev, I suffer from the restless legs syndrome too and I bought one of these circulation boosters you see advertised on the TV by Ian Botham the ex sportsman. It works great, and I try to use it every day before work for at least 30minutes. There's lots of makes out there but I bought the one endorsed by him "revitive". My mum borrowed mine and then bought her own! You can send it back if it don't improve your problem. Hope this helps.

You may also like...

Restless legs

last couple of nights not to have anything on my legs like pj bottoms but my legs are frozen they...

Legs

For the last few days my legs have been really agitated and driving me crazy had me up at 4 this...

Exercise advise? (single leg lymphoedema)

challenge, to get into the habit of doing some kind of physical exertion every day. I'm getting...

Lymphoedema and leg wounds/ulcers

HI, I am 42, I have painful leg wounds/ulcers on both my legs large ones always leaking with fluids...

Any luck with compression leggings?

compression leggings for sport/runners and I wondered if they would help lymphadema at all?