I need help with my Lipo-edema: I been suffering with... - LSN

LSN
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I need help with my Lipo-edema

CharoFricom
CharoFricom

I been suffering with this disease for so long !

Does anyone have it ?

9 Replies
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Hi ChariFricom - where are you based? This site is mainly lymphoedema focussed, but there are sites 'out there' where you will find help. In the UK, check out lipoedema.co.uk In the USA lipedema.org

There are several Facebook patient support groups too.

CharoFricom
CharoFricom
in reply to Lynora

I'm in Hawaii

There is not much help here

I'm going to rehab therapy but she sucks

Lynora
Lynora
in reply to CharoFricom

I have sent a PM - please check your messages on your profile page.

Hidden
Hidden

I have both. Diagnosed by Proff Mortimer in London after my secondary Lymphoedema didn't respond to conventional treatments.

Take a look at Lipoedema.co.uk

A really good charity.

Hidden
Hidden
in reply to Hidden

Oops sorry didn't see that you had already been directed to Lipoedema UK.

I have lipoedema and I find this sight and the information that people give are really helpful as well. ie cellulitis compression mld x x

I have been crying a lot

Is sad to see your body go

I'm enrolling in holistic medicine classes to learn about how to heal my body and be healthy again

Mel1313
Mel1313
in reply to CharoFricom

I feel for you x x my legs have been like this since I turned 14and only got diagnosed around 8years ago I'm 43now. I do not let it run my life and I hope in time you will feel the same. I find swimming and walking helps. keep your diet in check. Let me know how you get on with the holistic treatment xoxo

Thank you Mel

I've been doing a lot of research on this condition and I've been massaging myself with castor oil organic cold compressed which helps with inflammation. I can't wear compression stockings, they kill me. I have a problem with anything that is tight I guess because lipedema hurts.

My diet is low in fermented carbs and low fat . I find that helps but I'm still researching

Is your lymphedema primary like mine ?

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