Happy2015

Wishing you a speedy recovery! Congratulations on getting that far! It'll make a huge difference for you! Gillian xx

Snaomi in reply to Happy2015

Thanks Gillian. It helped being able to talk with you in advance. Appreciate it.

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Happy2015 in reply to Snaomi

You're welcome! Xx

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Libmeg

Great to hear recovery progress you are doing great sure you are over the worst now,wishing you a speedy recovery x

Chrissie2

Really good news. Well done. Onwards and upwards. Best wishes xx

Hidden

Hoping you recover soon and it has been worth it. 😉

Tav1

Please would you tell me a bit more about the operation and whether it was Private or not. I have bilateral lymphoedema from my waist to my toes for two years and the compression garments have not yet been measured correctly causing me more Pain so all in all in two years I've only had three weeks of wearing the garments I'm supposed to wear every day. I'm really interested in an operation but at the Oxford clinic they thought it was going to be about £18,000 when I enquired on the phone. I can't afford that! Very best of luck and wishing you well

About £18,000 when I enquired on the phone. I can't afford that! Very best of luck and wishing you well

Amanda

Snaomi

Tav1

Snaomi

Tav1 so sorry to hear of the problems you are having. It was years before I knew what I had and more years before I had therapy. Still wasn't schooled properly and not fitted correctly for years beyond that. In any event, I went to a seminar in 2015 looking for answers. That's when I heard and met the doctor who did my surgery speak on the 3 different surgeries they are having success with. Based off my circumstances for my left leg SAPL was recommended. Suction assisted protein Lipectomy is when the protein no longer moves through the leg and they suction it out. Kind of like liposuction only much more specialized as they do not want to do further damage to lymphatic system.

Unfortunately it is very costly and insurance does not pay for any of it. The surgeon I went to works out everything with the hospital, anesthesia and all other parties concerned for the best possible cash deal. Still very expensive. Until we get enough proof that the surgeries work insurance will continue to deny. I don't know how much is enough proof as there have Ben many who have had these surgeries now with long term success. I know of a woman who was not able to afford it and she did a GoFund me account and raised the money that way. My husband and I are gathering all supporting documents, pictures ect.. and are going to go try and do battle with medical insurance. Wish us luck.

Snaomi

Lynne-byn in reply to Snaomi

Wishing you a ton full off luck 🍀

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Tav1 in reply to Snaomi

thank you for all of that information and for your Your kindness in replying. I do wish you a great deal of luck with your medical insurance !

I have some eyesight problems so I'm not always able to visit the site As often as I would like that I will be thinking of you and sending you all good wishes for your continued recovery x

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Lynne-byn

Wishing you a speedy recovery, sounds like it's already a success, great news x

smilovich

I'm having my SAPL surgery in less than two weeks and I'm getting nervous about the recovery as I'm 73 yrs old and live alone with 2 dogs to care for. I may have to stay with my sister if there is a hospital stay or after care required. My surgeon said it was out patient surgery, but when the nurse called with instructions she said more of the patients are kept in the hospital for a few nights. How long did you have to wear the wraps. It's my right leg. Were you able to wrap yourself? When were you able to drive? I know each of us recovers differently, but really appreciate hearing about your recovery experience and did you do it alone? I had a VLNT last year and it was a difficult surgery (surgeries) and recovery. Maybe I'm anxious because that one didn't go so well. I know I will have most of my questions answered at my pre-op next week, but I'm a bit worried. I've learned so much already from your posts. Thank you.

Snaomi

smilovich , when I had my left leg done I was in hospital for 3 days. My therapist would come in and change bandages daily until garments came in. It took me 4 weeks before I could manage to get the garment on by myself. I was lucky to have my husband home to help me do this. It took about 3 months to feel decent. I suggest you walk as much as you can. My biggest challenge was going up and down stairs. I believe you will need someone to help you initially. Best of luck to you.