Living with Lymphedema in AnnArbor - Anyone else here?

[jc22]

Hello all - I am new to this site. I was diagnosed at age 10, I am now 22. Am late in finding a community like this, but better now than never. If any new diagnosees have questions, please feel free to contact me - I would LOVE to meet you. We all need support.

[Lynora]

Hi jc22 - this site is based in the UK, and now has quite a few overseas visitors. Are you aware of the National Lymphedema Network, which operates on your side of The Pond? lymphnet.org/ - There is also a patient-run group - lymphedemapeople, which was set up many years ago by Patrick O'Connor, who ran it until his untimely death in 2013 lymphedemapeople.com/

[Fizz-wig]

Unfortunately not AnnArbor. It took almost my life so far to be diagnosed with primary lymphoedema (28 years!) they spotted it at birth but still took so long to diagnose!