Clinics in Hertfordshire: Hi I've just received my... - LSN

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Clinics in Hertfordshire

Mandy50 profile image
13 Replies

Hi I've just received my letter from the clinic I have been referred to and they have refused me because I don't live in the borough. I have been informed that there are no clinics in Hertfordshire does anyone know any different? Thank you

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Mandy50 profile image
Mandy50
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13 Replies
Rebec profile image
Rebec

I was under the impress that we can choose the clinic we want to receive treatment?

If you research on the MLD website you should be able to at least find a private therapist mlduk.org.uk/therapists/ it is very frustrating for you and many others across the country, that there is not enough support in the UK. NNE

AnneBury profile image
AnneBury

The Lymphoedema Support Network has details of lymphoedema clinics. lymphoedema.org . Telephone 020 7351 0990.

LymphieJD profile image
LymphieJD

I went to my GP (after about 15 years or more of only self care) and was referred to Mount Vernon. But I do know they say it's hard to have new patients and want to discharge me for that reason!

😕

heretohelp profile image
heretohelp

A quick search of MLD UK shows that you have one near Royston. Google Kate John MLD . Good luck.

Mon1caM profile image
Mon1caM

No, I don't know any in Essex or Herts. I found the Lymphoedema clinic at St George's Hospital, Tooting, South London through the LSN and asked to be referred to them - GP referral OK as a start, but they do require a Consultant referral letter. They are excellent, with Prof. Mortimer as the main doctor, but also Dr. k. Gordon - she is excellent - I live in Essex, but found it was worth going to the experts, even though it is quite a journey for me. Getting the right treatment and advice is worth a great deal and has changed things for me enormously. I wish you all the best.

Claire66 profile image
Claire66

I believe that you could ask to be referred to the clinic at Mount Vernon in London Borough of Hillingdon...it is just cross the border. But i think there will be some criteria you have to meet to be accepted. Worth a try though. Good luck.

jjbinks profile image
jjbinks

There is a Lymphoedma clinic in Hatfield but it takes secondary cases only. I have primary lymphoedema and visit ARTHUR RANK HOUSE in Cambridge and have done for many years. Good clinic lovely nurses.

veriterc profile image
veriterc

I had the same problems (poor you) but eventually got my MEP in Brussels to sort things out. He was brilliant - details on after-cancer.info/category/...

can Good Luck!

LymphSuppNetwork profile image
LymphSuppNetworkPartnerLSN

Hi Mandy - you need to find out which clinical commissioning Group that you come under - just google your address and CCG and you should be able to find out. If you come under East and North Herts CCG then if your lymphoedema is not as a result of cancer then your CCG commission services at Mount Vernon although it may mean a bot of a wait. If you come under Herts Valley and your lymphoedemais secondary then you need to ask your GP to ask for an individual funding request - it may take time but should mean you are able to access treatment - even if it is in the private sector. Please note they will not usually fund MLD but will fund assessment and CDT.

lovesradio profile image
lovesradio

I am sorry to hear that it is such a complex procedure to find a suitable clinic for assessment and treatment in your part of the world.

I live in Biggleswade and go to my local hospice at moggerhanger for my treatment

veriterc profile image
veriterc

You're needing treatment during a bad time as everyone is focused on election. So have you tried your MEP? Details on how to about it on

after-cancer.info/category/...

My MEP wa miles better than my MP, and got me £2,000 worth of private treatment. It's worth an email - good luck!

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