I've been following up the 'SAVE THE NHS £100 - FOR EVERY £1 SPENT ON LYMPHOEDEMA TREATMENTS' petition which I flagged up again yesterday and found this on the BLS website:
Are you running a local event during Lymphoedema Awareness Week? Please tell us about it and we will publicise it for you – putting your service on the MAP. Do you need a “Pearls of Wisdom” LAW pack of resources? Please email info@thebls.com to order your free of charge pack including:
100 2 sided GP postcards
20 National Tariff Commissioner’s booklets
20 Population Needs and Professional Roles in the Care of Lymphoedema booklets
20 Treatment Pathway for Lymphoedema Patients with a Body Mass Index equal or greater than 40kg/m2
20 BLS Annual Educational Conference flyers
20 Pearls of Wisdom BLS pens
10 assorted sized BLS t-shirts
2 x A0 size wall posters
YOU CAN DOWNLOAD OUR TEMPLATE LETTER TO GP’S/MP’S AT: thebls.com
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Thanks and I have posted it onto Twitter . . . also the Lymphodema People on FB - but we still need much more exposure - this site / network seems to have a very limited number of readers / members or is this just my sense of the responses to posts here . . .
Yes, I contacted the person at BLS who started the petition and asked her how many signatures she was aiming for and she said 100,000 so similar to number of diagnosed patients...Yikes- that is a very tall order!
Will have to think of different avenues to tap into potential supporters via social media. Was pleased that,over last two days, have seen a steady flow of new signatures (t should reach 1,000 by the end of tonight) but still means we've git 99,000 to go! But hey,we're used to uphill battles!
I have been a little disappointed by the lack of people confirming that they have signed the petitions that I and the British Lymphology Society have organised. They can make a difference, but only if people sign them.
It is a valiant effort and those who have signed are to be encouraged to spread the word wider. Sadly many people sit back and leave the work to others then wonder why nothing improves. Remember we are all in this together and if WE, the LEs don't get organised and support petitions and lobby our medicos & politicians then zilch!
We all need to be more assertive to get any action or meaningful changes to the inadequate sytems we want improved.
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