Does anyone else have lymphoedema and chillblains? - LSN

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Does anyone else have lymphoedema and chillblains?

3 Replies

I've had chillblains before, but not since the lymphoedema started. I currently have 3 chillblains on my lymph foot and they hurt more than the 2 on my other foot.

Should I be worried? Is there anything I need to do differently with the lymph chillblains compared to the 'normal' ones?

3 Replies
naominorthenellis profile image
naominorthenellis

Hi Faethe. I get chilblains but i am not sure they are linked with my lymphoedema. I have found that if i keep the temperature of my feet fairly constant they don't appear. when it gets really cold i make sure that i wear a pair of socks over my stockings and also wiggle my toes from time to time to encourage some circulation. You could try putting those hand warmers in your shoes if you are sitting for long periods. A few things to think about!! NNE

suzie_danger_girl profile image
suzie_danger_girl

Hiya :-) I have primary le and have always had them. I was told they were linked. I've never suffered any complications as a result so don't worry too much :-) the usual rulea apply about being really careful with your feet, keep them warm clean and dry and well moisturised and you'll be just fine :-)

in reply to suzie_danger_girl

Thanks.

My lymphoedema is primary too, but only appeared about 18 months ago. I've had chillblains most winters for the last few years and had been told they were linked to poor circulation. I've also been told the lymphoedema is linked to poor circulation so I wasn't sure if they were linked to each other.

I know about trying to keep my foot temperature consistent, not too hot or too cold and I've been told to avoid artificial heat and just use good insulation (socks), which is what I've done in previous years before I had lymphoedema and it's mostly worked. I'm glad I don't need to do anything different now.

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