what do other people with compression sleeve do in the... - LSN

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what do other people with compression sleeve do in the sun?

16 Replies

I finished chemo and radiotherapy treatment after breast cancer over 2 years ago now. Kept covered up with long-sleeved blouses since then when in the sun. With the heat we have been having recently, I would like just to wear short sleeves as the compression sleeve makes me so hot. The problem is, although I will use high protection sun cream, I will have one arm with a slight tan and the other still pale if I go out in the evening without the sleeve on!! I know this may seem a petty issue to some of you who have lymphoedema much worse than me but it is an issue for me. Anyone got any suggestions?

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16 Replies
linda6 profile image
linda6

Hi Chrissie, I use fake tan to even up my arms. I would never subathe without my sleeve on as heat on the affected arm could cause it to swell even more. When I am gardenening or out in the sun I wear my compression sleeve with a long sleeve blouse over it.

The_Lympha profile image
The_Lympha in reply to linda6

Hi Linda6. I bought some fake tan for my leg but then got worried that my skin would react badly (quite sensitive).....do you use a special brand and how often do you do it? Did you ever have a reaction to the fake tan? Thanks

linda6 profile image
linda6 in reply to The_Lympha

Hi Lymphgirl, at the moment I use Leighton Denny from QVC but if you have very sensitive skin they also sell Elemis products and their sunless fake tan gives a lovely sunkissed subtle glow. All off their products can be used on highly sensitive skin and they are used in premium spas all over the world. I have used Elemis myself and it gives a lovely sunkissed glow. If you buy any products from QVC and find that they don't suit your skin they do a 30 day money back guarantee, its no risk shopping..

norberte profile image
norberte

hiya chrissie

i wear sleeves & gloves on both arms so don't have that problem!

you could put sunblock on the arm without a sleeve on, so they both stay pale?

or you could put fake tan on the lymphy arm for going out?

i still wear sunblock under the sleeves - i use p20 & put it on in the evenings - cos i find the sun gets through

another tip - spritzing cold water straight onto your arm in its sleeve is bliss if you're feeling hot & bothered, evaporates again quickly so you don't stay soggy

& if it bothers you, it's not petty! we're not here to judge each other or compete for who's got the most / least right to have a moan!

hope you find something that works before the sun disappears again - i'm also lucky in not liking the sun, so i definitely live in the right country for me

in reply to norberte

Thanks for the tip about spraying on water - never thought of it. I don't like the sun particularly but do a lot of walking and would prefer not to have to wear long sleeves

lovesradio profile image
lovesradio

Hi Chrissie I struggle with this as well. I generally put a higher factor suncream on arm that I wear sleeve on if I take it off if you see what I mean, but I am cautious as last year in Dubrovnik on holiday my arm increased in size and was sun sensitive (I think). On some hols I have worn sleeve during day and taken off in the evening to go out. I now wear sleeveless tops with a wee short cardi to hide the 'gap' at the top of my arm, or a loose thin linen shirt also works quite well. Spraying on water is a great tip to share. I love the sun and swimming in the sea in warm countries but since diagnosis in 2007 I have been pretty cautious about it all. Some suncreams are good moisturisers but not all of them are. Good luck to all arm lymphies xx

in reply to lovesradio

thanks lovesradio. I must be careful when going to warmer climes in September - the first holiday we will have had when there should be sun. It will also be the first time I have flown since being diagnosed so hopefully the sleeve will do its job!

lovesradio profile image
lovesradio

Enjoy your sunny holiday! Flight should be fine but do wear your sleeve for it. Last time I flew, I was really conscious of the pressure changes on my arm but it's the first time I've noticed it!

Carolyninewman profile image
Carolyninewman

I am not promoting my company.. but I have lymphedema after breast cancer. I live near the beach and I am always in the sun. When I don't want to wear my sleeve, or its dirty... or I want to take a swim.. I always wear my cover up item "arm Candy" by Warrior Wear. It acts like a sun block, allows me to swim, keeps the arm covered and I feel like my arm doesn't look bad or is exposed. I am so used to covering it up, I feel naked without my compression or my Arm Candy.

I wear just the arm candy to go to the beach because it is so light weight yet effective as a sun block.

Hope this helps. If you want my web site just ask. I really don't want to advertise.. Its not my thing.. Just want to help and be helped by everyone here.

in reply to Carolyninewman

I would be interested in looking at your website. Have looked at various websites but couldn't find anything resembling a cover up item

Carolyninewman profile image
Carolyninewman in reply to

I can be found at warriorwear4u.com

in reply to Carolyninewman

thanks, will think about it as I am in the UK and it makes it quite expensive. It was good reading your story - keep up the positive thinking

reetpetite profile image
reetpetite

Hi Chrissie. I ALWAYS wear my sleeve now since stern advice from someone I met with severe leg problems and my lymphodema is well controlled. :) I like to holiday in hot countries and tend to be in the pool/sea the majority of the day to cool myself down, and get the much needed exercise! I wear sleeveless dresses/tops and always wear a BLACK compression sleeve. My wardrobe tends to be monochrome and the black sleeve adds a little something. In fact people ask me where I buy my long "gloves" from because they like the look and would like to purchase one!! A few self adhesive crystals to the sleeve also adds a little sparkle to the outfit and makes me feel less of a sufferer and more of a fashion diva!

Carolyninewman profile image
Carolyninewman in reply to reetpetite

great ideas... A little bling

reetpetite profile image
reetpetite in reply to Carolyninewman

Absolutely! As I have to wear the sleeve every day for life, I want to make it a part of my wardrobe. I do not wear flesh toned ones as I feel as I have a false arm look, so I go for black. Would love a white and navy blue one but don't know whether the NHS would supply. Any ideas??

nicolams profile image
nicolams

Thanks so much for all the good advice everyone - I do a lot of gardening, wearing the sleeve, take it off in the evening and bingo I have a white left arm and a brown right one!!

But not after all your good advice...

reetpetite -

check out chic compressions ...run by a lymphodema specialist who also works in NHS....I have gone all handbags about my sleeves now i have found her ; whenever i have a bit of spare cash i am straight onto her website

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